This topic is about a person who has shared a humorous poem titled "Ode to My Ostomy," along with some reflections on their experience with having an ostomy. The poem and reflections offer a mix of humor and candidness about living with a stoma. Here are some key points and advice shared in the discussion:
- The poem humorously personifies the stoma, questioning its presence and behavior, such as being noisy and causing leaks. The writer jokingly sets rules for the stoma, like avoiding embarrassing situations and not overfilling at bad times.
- Despite the humor, there's an underlying acceptance of the stoma, though the writer looks forward to a possible reversal in May.
- A second poem, "Surf," is shared, which takes a more somber tone, expressing the emotional and physical challenges of multiple surgeries, loss of dignity, and a desire for healing and happiness.
- The writer seeks connection with others by asking if they have Facebook pages to exchange contact details for support.
- She mentions not having an at-home ostomy nurse, relying instead on a hospital nurse for basic questions and the forum community for practical advice.
Advice and insights from the community include:
1. Many members praise her poetic talent and encourage her to continue writing as a way to process her feelings.
2. The community offers emotional support, virtual hugs, and daily check-ins to help her feel less alone.
3. One member shares that while repeated surgeries can be tiring, maintaining hope and strength, along with reading others' stories and humor, can make the journey more manageable.
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