This topic is about someone dealing with severe ulcerative colitis (UC) that hasn't improved with medications like Balsalazide, Prednisone, and Remicade. They're considering having their colon removed and living with a permanent ostomy to regain a "normal life." They're looking for honest experiences from others who have gone through this, including how long recovery takes and how to adjust to life with an ostomy.

Here are some insights and advice shared by others:

1. Quality-of-life trade-off
- Many people report that their life improved significantly after surgery, describing it as "far better," "the best thing I've done," or "instant relief," despite the initial learning curve.
- It's important to be aware that this is a life-changing decision with permanent effects, both physically and psychologically.

2. Surgeon choice
- It's crucial to choose an experienced colorectal surgeon rather than a general surgeon. A skilled surgeon can be a valuable resource if any issues arise later.

3. Recovery expectations
- Recovery times vary, with some returning to work in about 9 weeks, while others take up to a year to regain full strength.
- The surgery is major, often lasting around 8 hours, and complications like internal abscesses can extend recovery time.
- Adjusting to life with an ostomy involves learning new routines for pouch management, dealing with interrupted sleep, and addressing body-image concerns.

4. Product selection and samples
- Before surgery, reach out to manufacturers like Convatec and Hollister for free samples to find the best fit and comfort.
- Stoma nurses and fellow ostomates can provide valuable advice on choosing the right products.

5. Surgical options to discuss with your doctor
- Consider discussing the differences between a total colectomy with rectum removal and a subtotal colectomy where the rectum is left intact, as outcomes and appliance types can vary.

6. Cancer-risk consideration
- For some, a colectomy is recommended due to the increased risk of cancer from long-standing UC, and removal can eliminate this concern.

7. Support system
- Having a strong support system, including family, friends, a reliable surgeon, and online forums, is invaluable throughout the decision-making process, surgery, and adaptation period.

8. Additional resource
- There is an older discussion thread with detailed experiences that might be helpful: https://www.meetanostomate.org/discussion-forum/viewtopic.php?t=7563