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Jul 31, 2017

Rectal Stump and Intentional Mucous Fistula Experiences?

This topic is about dealing with an unexpected development after ileostomy surgery, specifically an intentional rectal-stump mucous fistula. This is when the top of the rectal stump is intentionally connected to the inside of an incision to allow mucus to exit the body. In this case, the fistula opened later than expected and is causing some issues.

Here are some key points and advice shared:

1. After the surgery, a painful, red lump appeared near the pelvic incision. Initially thought to be an infection, it was later identified by the surgeon as an intentional mucous fistula. This was meant to open shortly after surgery to allow mucus to drain, but it opened much later and is now a large, bleeding wound.

2. The current situation involves heavy drainage of blood and mucus, enough to soak a sanitary pad within minutes after showering.

3. A temporary solution has been to cover the area with an additional ostomy bag to manage the drainage.

4. Emotionally, this has been challenging. After adjusting to life with an ileostomy, this new development feels like a setback, especially since the fistula was not explained before the surgery.

5. The next step is to contact the surgeon to confirm if the extent of the opening and bleeding is normal and to seek advice on how to manage it.

6. Other people in the community have not encountered an intentional mucous fistula before. They recommend asking the surgeon detailed questions about its purpose, what kind of output to expect, how long it should take to heal, and how to care for it.

7. There is a lot of interest from the community in learning from this experience. They are eager for updates to understand more about managing such situations and to develop best-practice care approaches.
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