This topic is about the experiences and concerns of living with a continent ileostomy, specifically a Kock pouch, for over 30 years. The person who started the discussion has had their Kock pouch since 1980 and is interested in connecting with others who have had similar experiences to share insights and learn about how things have changed over the years.

Here are some key points and advice shared in the discussion:

1. The original surgery was performed at Mt. Sinai in New York City, with subsequent repairs and a revision at the Cleveland Clinic in 1981. Since then, there have been no problems.

2. Living in an area with limited local medical knowledge about continent ileostomies can feel isolating, especially when medical issues arise.

3. There was a recent concern about how a potential hysterectomy might affect the pouch, but this issue has been resolved for now.

4. After undergoing major shoulder surgery four years ago, recovery was challenging, and it required modifications to yoga practice and teaching.

5. The person is curious about who performed others' Kock pouch surgeries and how they are managing.

Advice and insights from others include:

- Many have found success with their continent ileostomies when repairs are done at high-volume centers, such as the Mayo Clinic and Cleveland Clinic, with reports of long-term functionality and no problems for several years.

- If you are considering any non-abdominal surgery, like shoulder procedures, it's important to plan ahead and discuss your Kock pouch with the surgical team to ensure proper care during the operation.

- Joining Facebook support communities for Kock pouch and continent ileostomy groups can be very helpful. These groups offer shared experiences, troubleshooting tips, and up-to-date resources, which are especially valuable when local medical expertise is limited.