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40,818 members
Jan 16, 2018

Anyone Here with a Continent Ileostomy Since the 80s?

Topic Explanation:
The forum topic is about continent ileostomy, with the original poster sharing their experience of having a continent ileostomy since 1980 and inquiring if anyone else has one.

Relevant Advice and Insights:
- There are two Facebook groups for continent ileostomies, named Koch Pouch, where one can find collective wisdom and support.
- Some individuals have had successful repairs and revisions for their continent ileostomies at medical centers like the Cleveland Clinic and the Mayo Clinic.
- It's beneficial to seek advice and support from others who have experience with continent ileostomies, especially if the local medical community lacks knowledge about it.
- One individual shared their experience of handling major shoulder surgery with a continent ileostomy, highlighting the challenges and changes in their yoga practice and teaching.
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