Does anyone here have a continent ileostomy? I have had one since 1980, having had a conventional ileostomy for four years and deciding to have the conversion. I realize so much has changed in the options available in the last 38 years, but I was just wondering if anyone else has one?
littlered1
Jan 16, 2018 12:42 am
Zappo
Jan 16, 2018 1:37 am
I got mine at the Mayo Clinic in 1979. Have you had your shoulder surgery?
littlered1
Jan 16, 2018 1:45 am
Thanks for responding! I got mine first at Mt. Sinai in NYC, and after two repairs, went to the Cleveland Clinic for the third revision. I haven't had any problems since. How are you doing?
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Posted by: infinitycastle52777
Yeah a year ago I wouldn't have known what to ask to find out I had a parastomal hernia. The only reason I knew about them is from this site. Thank goodness for this site. Otherwise I would still be clueless. If I hadn't though from stuff on here to ask my surgeon about having a hernia, then I would have never had the CT and I would have never known that she should have known about it a year ago.
Zappo
Jan 16, 2018 1:53 am
My last repair was also at the Cleveland Clinic. No problems for the last six years. Did you have your shoulder surgery?
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Zappo
Jan 16, 2018 1:55 am
I've been having shoulder pain and am thinking of going to a doctor. I never thought about how I would handle surgery.
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Zappo
Jan 16, 2018 2:14 am
One last comment. If you are on Facebook, there are two groups for continent ileostomies. Just search for Koch Pouch. Lots of collective wisdom.
littlered1
Jan 16, 2018 2:58 am
Oh, thanks for the info! I will check that out. I live in an area where the medical community is clueless about the CI, so I feel isolated and insecure. I may need any medical care. I thought I might need a hysterectomy and was worried about that, but so far, that's not an issue!
Who did your Kock pouch? Dr. Fazio did mine at CC in 1981.
And yes, I had major shoulder surgery almost four years ago. Did I post that on here? I don't remember that - lol! It was very challenging, for many reasons. I'm doing fine now. However, my yoga practice and teaching have changed quite a bit.