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41,442 members
Jan 06, 2010

Hello from a New Ileostomate - Seeking Advice and Sharing

This topic is about adjusting to life with a new permanent ileostomy, specifically dealing with issues like anal discharge and enjoying activities such as traveling and snorkeling. Here are some helpful tips and insights:

- Anal/Rectal Stump Discharge:
- It's common to experience ongoing mucous drainage and a "phantom urge" to go. This might improve over time, but it's a good idea to keep pads handy just in case.

- Traveling with an Ileostomy:
- Reach out to an ostomy supplier for a free compact travel kit. This kit can hold about 10 pouches, 2 wafers, paste, and wipes.
- Baby wipes are a lifesaver when facilities are lacking. You can quickly swap to a fresh pouch, clean the flange with wipes, and reattach everything in about 5 minutes.
- Always keep a basic emergency supply kit in your day-bag or vehicle for peace of mind.

- Water Activities (Snorkeling, Surfing, Swimming, Hot Tubs):
- Before heading into the water, change to a fresh pouch or full appliance.
- Barrier rings, also known as sealing rings, are better at repelling water than paste and help prevent leaks at the edges.
- Many people have no issues spending 1–3 hours snorkeling, surfing, or soaking in hot tubs when using systems like the Hollister New Image 2-piece or Convatec 2-piece.
- Make sure you have a good seal and check for leaks before enjoying pools, oceans, or hot tubs.

- General Support:
- The community is very supportive, so feel free to ask any questions. Many members travel, swim, and lead active lives with an ileostomy, and they're happy to share their experiences.
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