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Jan 21, 2010

Questions about ileostomy experiences and concerns - seeking advice and support

Topic Explanation:
The forum topic is about seeking advice and support regarding experiences and concerns related to having an ileostomy. The original poster, Lorraine, shares her experience of having an ileostomy due to surgery complications and seeks advice on various aspects, including bowel movements, sleeping patterns, potential reversal surgery, and safe foods.

Advice and Insights:
- It is normal to have occasional fecal staining and mucusy bowel movements, especially with a loop ileostomy.
- Sleeping patterns may be disrupted due to the need to empty the bag during the night. Using sleeping tablets or setting an alarm for a specific time to empty the bag can help manage this.
- Reversal surgery experiences vary, and it's important to discuss potential outcomes and concerns with the surgeon.
- Adapting to a new diet and identifying safe foods is a process that may require trial and error. Some individuals may experience discomfort with certain foods, such as those causing gas or a burning sensation.
- Ensuring the correct fit of the pouch and wafer around the stoma is crucial to prevent leaks and discomfort. Changes in stoma size and shape over time may require adjustments to the pouching system.
- Using an ostomy support belt at night can provide extra support and help prevent leaks.
- Adjusting the size of the hole in the base plate may alleviate irritation around the stoma.
- Some individuals find relief from discomfort by eliminating certain foods, such as pork and foods with tough skins, and incorporating plain yogurt into their diet.
- Using stoma powder during bag changes can help manage a burning sensation around the stoma.
- Anal leakage is a common experience due to the body's natural production of lubricant, and it can be mistaken for a bowel movement. Managing this and venting the bag during the night can help prevent leaks and discomfort.

These insights and advice provide support and practical tips for managing various challenges associated with having an ileostomy.
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