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Sep 10, 2018

Need advice on managing high output stoma in 12-year-old

This topic is about a parent seeking advice on managing a high-output stoma in their 12-year-old son. The boy has had a stoma since he was just two weeks old, and recently, his stoma output has increased significantly. Although they tried adjusting his fluid intake and diet, these measures are no longer effective. The doctors prescribed Imodium to help manage the output, but it has caused severe abdominal pain, and his urine sodium levels are very low. The parent is looking for guidance on how to control the stoma output and prevent dehydration.

Here are some helpful suggestions:

1. Review Imodium dosing with a physician:
- High doses of over-the-counter Imodium can lead to painful cramping. It might be helpful to reduce or halve the dose, but this should be done under medical supervision.
- Consider using liquid Imodium, which allows for more precise dosing. A 5 ml syringe can help measure the smallest effective dose.

2. Investigate possible intolerance or allergy:
- If cramping persists after taking Imodium, it could be an allergic reaction. Stop using it and consult a doctor for evaluation.

3. Consult appropriate specialists:
- A gastroenterologist or surgeon with experience in pediatric stomas can help adjust medications.
- Regular consultations with a nephrologist are important, as individuals without a colon may face kidney issues, which can manifest as low urine sodium.

4. Address hydration and electrolytes:
- Replace plain water with electrolyte drinks, such as powdered mixes or Gatorade, to help correct low sodium levels and reduce the risk of dehydration.
- Add extra salt to foods, following the physician's recommendations.

5. Monitor diet and potential blockages:
- High-fiber meals can worsen cramps, so consider reducing fiber intake when output is high.
- High carbohydrate intake can lead to increased gas and discomfort, so it may be helpful to track and moderate carb consumption.

6. Observe output changes:
- Sudden changes to a "yellow liquid" output or very watery losses, especially in hot weather, can indicate dehydration or a potential blockage. Seek medical attention if these symptoms persist for more than 24 hours.

7. Avoid masking serious conditions:
- Use anti-diarrheal agents with caution, as excessive use may hide signs of obstruction or other complications.
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