This topic is about a young person with cerebral palsy who has been dealing with lifelong challenges of urinary and fecal incontinence. They are planning to undergo a Mitrofanoff procedure to address urinary issues and are considering a colostomy to manage bowel control, as other treatments have not been successful. The individual is seeking advice and insights from others who have experienced similar situations.

Here are some helpful insights and advice:

1. Many people who have chosen a colostomy report a significant improvement in their quality of life compared to living with unmanaged fecal incontinence. They often express that they would make the same choice again.

2. Be prepared for a learning period after the surgery. Initially, you might experience leaks and issues with the appliance, but these usually improve as you find the right products and routine that work for you.

3. Colostomy irrigation is highly recommended. Establishing a regular irrigation schedule can lead to no daytime output and fewer pouch changes, making daily life more manageable.

4. Collaborate closely with your surgeon and a wound-ostomy-continence (WOC) nurse to find appliances that suit your body and skin. Some people experience allergic reactions to certain barrier wipes or adhesives, which can cause leaks.

5. Discuss with your surgeon the risk of developing a parastomal hernia, especially since cerebral palsy may weaken abdominal muscles. They might suggest preventive measures or support garments to help manage this risk.

6. Consider adjusting your diet and meal timing. Eating late in the evening can increase nighttime output, so changing meal times might improve your sleep and overall convenience.

7. After recovery, many people lead full and active lives, including travel, work, and social activities. Carrying a small supply kit is a minor addition to your routine, and the pouch contents are discreet.

8. Remember that seeking this surgery is a valid choice. Many others have faced similar decisions and found relief, freedom, and confidence after healing. Emotional support is important, and you are not alone in this journey.