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Feb 22, 2019

Struggling with Ileostomy and Eating Disorders - Need Advice

This topic is about someone who has recently undergone an emergency surgery that resulted in an ileostomy, a procedure where the end of the small intestine is brought through the abdominal wall to create a stoma. This person is also dealing with long-standing eating disorders and severe depression, making the adjustment even more challenging. They are seeking advice and support from others who might have faced similar situations. Here are some helpful insights and advice shared by others:

1. Mind-set and pacing
- Try to maintain a positive outlook and take recovery one step at a time. Let your body guide you in making changes to your activities and diet.
- Using humor can help ease tension and clear up any misconceptions about living with an ostomy, both for yourself and those around you.

2. Social disclosure and support
- Some people find that talking openly about their stoma with friends and family reduces awkwardness, and humor can make these conversations easier.
- Others prefer to keep their ostomy private, as people generally remain unaware unless informed, which can help avoid unwanted attention.
- It's important to identify and rely on genuine friends. Online communities can also provide additional, judgment-free support if local support is lacking.

3. Mental-health care
- Seeking professional help for depression is crucial. Genetic testing might help guide medication choices, especially if there is a family history of atypical responses to antidepressants.
- Working with a counselor experienced in eating disorders is highly recommended, as adjusting to an ostomy adds an extra psychological burden.

4. Nutrition with an ileostomy and eating-disorder history
- Most people with an ileostomy eventually tolerate a wide range of foods. Introduce new foods gradually and chew them thoroughly.
- Some foods may need to be limited or carefully portioned, such as popcorn, mushrooms, cooked spinach, corn, orange segments, and apple peel.
- Aim to include starch, protein, and fat in every meal. Pair fruits and vegetables with easily digested starches so that high-fiber items aren't the main part of a meal.
- Keep an eye on your weight, as adequate caloric intake is essential for both healing and recovery from eating disorders.

5. Practical offers
- Members of the forum have offered to provide direct email contact for specific questions about pouching, lifestyle, or just for general companionship.
See full discusison
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