I am a member here, but don't do much posting. However, I do have a question I would like to ask.
I am wondering if many have a similar problem as I do. Not so much after breakfast, but after lunch and dinner, I cannot leave the house for about an hour. My pouch just keeps on filling.
I do not have short bowel syndrome, as far as I know. Never been diagnosed. I had an internal pouch for a year, then made into a regular ileostomy. The pouch was made from my small bowel, so about 1-2 ft at most was used. My understanding is if you have at least 20 ft, which I do, it is not a problem.
I also get up 2-3 times a night to empty the pouch.
I am interested to know if anyone deals with the same issue. Also wondering if anyone has a problem with lower abdominal cramping. I work with a dietitian, so have my bases covered on diet and various testing.
Thank you all in advance for any input you may have.