The idea stuck in my craw at first. Four days on the Appalachian Trail (the A.T. to us cognoscenti)? I’d never even been camping before. My wife was excited at the prospect, though. I could see that she wanted to go. At the time, I was changing my ostomy every fifth day so, barring some problem, I would be okay. But problems were a distinct possibility, I said. I’d be sweating a lot, which could necessitate premature changing. In the middle of the woods? With no hot water? What would I do, sit on a rock? We went. I stuck two ostomy changes in my pack and hoped the heat wouldn’t mess with it. We had a borrowed tent, a water filter, a small camp stove, all the gear we needed. From our research, we knew where all the springs were for water refills. The most important item which each of us had was our poncho, since it poured unremittingly for the first three days. The trail was either uphill or downhill; that was it. It was awash most of the time. We had to keep wringing out our socks. There was no scenery to marvel over, since the trail itself, where we were in North Carolina, was a green tunnel. We had to keep our eyes focused on the three feet directly before us so as not to trip on a protruding stone or tree root. My intrepid spouse enjoyed herself much more than I did, but we reached our goal. Filthy, caked with mud, damp all over, hungry as black bears, we stumbled into the Nantahala outdoor center restaurant and chowed down. Needless to say, I haven’t been in a tent since.
Henry,
As an AT section-hiker, I've often taken trips like this one in order to accumulate miles...but only by myself. I would never take a friend or loved one on a wet slog such as this. For me, the solitude is worth the tribulations, but others usually want perfect weather and a payoff; magnificent views, waterfalls, or at least a city stop with a craft brewery or two. As opposed to starting out on a week-long slog, I'd perhaps urge new AT backpackers into doing destination day hikes to a nice view or even an overnighter to a shelter where you can chat with other hikers. The AT is an amazing trail that we're so fortunate to have here in the US. It can change lives.
As for backpacking with my ostomy appliance, I bring alcohol wipes, which is all I need to change it, if that becomes necessary. I think I've only had to change it once in the almost 300 miles I've hiked on the AT. I would caution those with protruding stomas to make sure the backpack hip belt will not interfere, as they tend to sit right over the stoma location. My stoma is flush to my skin, and I wear a convex wafer, so I do not have any issues with irritation from the hip belt.
If anyone is interested in getting out on the AT or any other trails for a few days, don't hesitate to contact me with questions.
Mark
MeetAnOstoMate is a remarkable community of 41,452 members.
“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”
“Our oncologist literally wrote down the link; they said more patients need this website.”
“This place pulled me out of the dark. I went from lurking to living again.”
“At 3am, someone’s awake somewhere in the world. I’m never alone here.”
I want to thank everyone for their suggestions, messages, and tips! So many have helped! We are learning as we go, learning the ins and outs of this bag. I have ordered special tape that does not irritate my skin and am now using Domeboro powder before putting on a new bag. My boyfriend says that my skin is so much less red!
Saw an ostomy nurse today; she said my boyfriend is doing everything right. One of my issues is that I am really thin, and my skin is really crinkly due to the surgery. We shall see how this bag goes.
This site is a real blessing. Everyone here is so awesome!
Kim
I heartily agree with you about the benefit of solitude on the trail. I had a favorite hike in southern Utah, about seven miles west of Bryce Canyon N.P., where I often hiked solo and only encountered another person once. I recommend to you a wonderful essay entitled "An Entrance to the Woods" by Wendell Berry. It is his well-written description of going alone into the woods of Kentucky. "Though from the high vantage point of this stony ridge," he wrote, "I see little hope that i will ever live a day as an optimist, still I am not desperate. In fact, with the sun warming me now, and with the whole day before me to wander in this beautiful country, I am happy."
Learn more about ostomy accessories, and when to use them.
Ya know, Mark, I'm really interested in you and/or Henry doing the AT thing. Thanks for the offer but I'll be so happy with you sharing your experiences. I'm doing my hiking in the local parks on walking paths, never exceeding about a 2% incline but I'll be thinking about you somewhat enviously.
Enjoy,
Mike
My Ostomy Journey: April | Hollister
Mike,
The AT runs through New Jersey. I've been told several times that the NJ section of the AT is surprisingly beautiful and underrated. You'd truly be surprised how well we ostomates do in the woods. I'm in Maryland, so let me know if you'd like to try an overnight trip.
Thanks for the invitation, Mark. I would love to do an overnighter but I won't because I'm way too old and if I did successfully accomplish it I probably wouldn't be able to shut up about it. I think Bob is in Maryland and he might just be waiting for an invitation.
Mike
The invitation is open to anyone who wants to go. Just let me know. Also, I manage a UOAA affiliated support group (ASG) for local outdoor activities where members can post local activities and events. Check it out here: https://www.facebook.com/groups/353856981953889/about
Please feel free to join. It's a small private group. The public (non-members) can't see anything except the name of the group.
Well, I don't think you're too old. Did you know an 82-year-old man hiked the entire 2200 miles just last year?
Oh, and Grandma Gatewood is famous for hiking it several times, using a potato sack as her backpack. LOL. Talk about inspiring!
https://en.wikipedia.org/wiki/Grandma_Gatewood
Mark
We never managed to get onto the Appalachian Trail, although we have day-hiked many other trails in West Virginia, Kentucky, Tennessee, Mississippi, Wyoming, Montana, North Dakota, ... (Have slide-in camper, will travel!) Unfortunately, it's not the stoma that gives me problems and has curtailed our hiking, but the neuropathy in my feet. I can no longer trust my feet to stay on the trail, and some of the trails we have hiked in the past that were perfectly safe with healthy feet are not worth the potential falls anymore. Nowadays, I stick to the tamer trails in the local parks and nature areas. But I'm certainly glad I have my memories! Including one hike of about an hour or so that we did in ponchos and water shoes because of the rain - including our kids, about 8 and 10 at the time! We all had a blast!
Sorry to hear this, Dana. I'm glad you're able to still get out for local hikes (and to know it's not your appliance causing trouble). Is it true exercise is useful for alleviating symptoms of neuropathy?
Learn about the physical and emotional benefits of using ostomy accessories.
While many people might assume that a medical condition like having an ostomy would prevent someone from tackling a major hike like the Appalachian Trail, your post highlights a powerful truth: with the right preparation and mindset, it's absolutely possible to take on such a challenge. The experience of hiking the A.T. with an ostomy creates a unique set of memories, from the practical adjustments of managing supplies on the trail to the profound sense of freedom and accomplishment that comes from proving to yourself that your condition doesn't define your limits. It's a testament to resilience and adaptation, turning a potential obstacle into a part of a larger, life-changing adventure. Sharing these memories not only celebrates your personal journey but also serves as an incredible source of inspiration for other ostomates, demonstrating that a full and active life is not only possible, but it can include some of the most memorable wilderness experiences imaginable. https://dream-horse.co/