Dealing with Persistent Peristomal Itching Post-Urectomy

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680
AFVet
Aug 30, 2020 8:40 pm

I am 7 months out from receiving a urectomy.  I'm still having a great deal of peristomal itching and irritation. I am wondering if anyone else has had this unresolved issue for this length of time?  Also seeking suggestions as to how others have remedied the itch and irritation following their surgery. I have tried a variety of manufacturers' products and to date none have alleviated the problem.  Would appreciate any input.  Thank you!

iMacG5
Aug 30, 2020 8:59 pm

Hey AF guy, I suggest you discuss this with a WOCN. Your surgeon or PCP could put you in touch. Those nurses are usually quite good at fixing stuff like you present. Let us know how you make out.

Mike

Posted by: Brooklyn kara
Nervous but excited about tomorrow. I have been reading some of the threads here and am brand new to the site. I am grateful to have had the ileostomy so my body had a chance to heal but am truly hoping all goes well with the operation and future.

I have a collapsed disk in my back and sleeping on it for the past 7 months because of the bag has caused me constant daily excruciating pain. I haven't slept through the night and have had so many accidents.

I am so glad I found this site. Gained so much information so I am much better prepared for what happens post operation and what worked for people diet and supplement (fiber) wise. Thank you for that.
AFVet
Aug 30, 2020 9:09 pm

Thanks, Mike, I've been to see a WOCN one time without positive results.  I will make another appointment to see her again.

Bill
Aug 31, 2020 7:41 am

Hello AFVet.

What you describe 'might' be caused by scar tissue (or fissures), which are still 'healing'.  Unfortunately, sometimes this process can be overdone and the scar tissue continues to grow. I am 18 months from heart surgery and still concerned about itching, irritation and what feels like a stretching or tightness. I read an article some time back where they were having some success with a physio-approach to the problem. If I recall correctly, the nurses were systematically stretching the scar tissue to break the adhesions. Now this, I presume is not something for the amature to experiment with, so it would be advisable to get a proper diagnosis and 'if' it is unwanted scar tissue, then ask about this procedure. If I can find the article again after all this time, I will post it.

Best wishes

Bill