My name is Marsha,, and I've had my ileostomy for more than 50 years, since I was a teen. I reallly liked what you had to say in y our profile. I was very young, when I had my surgery,, but I accepted it readily, preferring the ostomy to the uncertainty of 4 years of ulcerativie colitis. It allowed me to get back to real life, school, dation, activities....and then later, marriage & 2 babies... Little did I know than how many problems there could be with ostomies, and for the mosst part I had no serious maintenance issues in the first 45 years.. I s wam, biked, snorkeled, and did whatever I felt like doing........as long as I took my supplies along. Back in the dark ages, there were no stoma therapists/ so people with ostomies helped other newbies I did that for a few years.. My ex also had an ileostomy, but his surgeon fashioned one that wwas about 4-6 inches long ( almost like another penis) and it developed a bulging curve over time.. making it difficult to change... Perhaps he actually had a " prolapsed" stoma, Eventually, he had his redone ( pproblem free) to about an inch ( likke mine) and that ended problems wiwth changing... over time, ( and two pregnancies) my stoma haas pulled back in, so the bottom half is only about skin level.. That does cause more leaks now, than I eveer had in the last 50. But i've been advised to do the best I can, and as long as it continues to function, don't get involved in surgery.. I use convetec convex two piece system, so changing is relatively simple. But I didn't avoid the hernia issues. I had a small incisional hernia for years.....but started getting larger... Now it looks like one side of my belly is " somewhat pregnant". Again, I was advised to leave it alone, a s long as it's not bothering me... So thats the medical/ surgical history..
I was married for 24 1/2 years.....and divorced more than 20 years ago.. Once single, I worked as a teacher, and managed to travel t he world...... on discounted options affordable on a teacher's salary... I was born in Brooklyn , NY, but we moved to NJ to buy a house, and that's where I've remained. Although I've lived here in what once was rural NJ, over time it''s become suburban. Gone are most of the fields, and farms & trees, But I'm still only a 1/2 hour from " The Beach" / or The " shore" as they say in NJ.. CAn't get the city out of t his gal as I still consider myself a transplanted New Yorker... I still have many interests ( music, reading, theater, dining out, cooking....socializing with friends etc, but my wings have been somewhat clipped and long distance travel is not really an option.....for now, given covid.. I have 2 grown sons, both married and raising kids of t heir own. My older son has a 10 year old little girl, and lives in the " wilds" of the Pocono Mountains, in Pa, and my younger son met an Australian gal, and moved to Australia ( south of Brisbane). I have two Aussie grandsons, who are growing up so fast ( 8 & 12 now) I've been to Oz 7 times, and had hoped to be able to continue to go yearly.......but life doesn't always give you what you want.. I'm grateful for face time and facbook... I think this is enough for now. Please write if you'd like . I'd love to hear from you. Marsha