Hi everyone, this is my first time posting. I've had my ileostomy for 5.5 years now; it was supposed to be temporary, but COVID kicked in 6 months ago. I finally went in for a reversal, but then boom, I went into total respiratory failure, so my consultant is not for doing the reversal now. I have to say I've never gotten used to it and was so happy when I thought finally. So you can imagine my disappointment. I'm on quite a few meds for osteoporosis, depression, and chronic pain. I don't eat a lot, and still, I can't get rid of weight. I can't walk far due to fractures in my back, which gets me down big time. I just need help.

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past member
After I got my ostomy I found this site and got a lifetime membership. I have had so much help from the core members, things that even the wound care nurses didn't know. If you haven't been through this journey you don't know - only the people that have experienced this first hand truly understand what your going through. The support is enormously helpful getting through this. Afterwards when you start to learn how to deal with this new normal you can begin to help others. ...mtnman.