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Who Irrigates?

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Thu Jan 28, 2021 8:36 pm

Hi Ya!

I'm kind of new here, although I joined back in 2018, but just recently found this site again.  I'm approaching the 3 year mark with my colostomy and would like to see who else on this forum irrigates.  I've been irrigating for a couple years now without issue.  Just recently I changed to a plant-based, whole foods diet and WoW is my colostomy acting like a fool.  She now likes to hide below my base plate, making it difficult to irrigate.  I have to do a sneak attack on her to get the cone in...LOL!  Anyone else experience changes in irrigation when you changed your diet?

Best!

Shannon

 

 

 

 

Thu Jan 28, 2021 9:42 pm

Hi sunny, 

I do irrigate. Have not had that happen to me during irrigation. My diet definitely affects my output but not my stoma. Maybe those that have had this will pipe in. It has been talked about quite often but not sure is has been talked about relating to diet. Curious to hear. You could go back and read some topics about Prolapsed stoma. Is this what is happening? Does it just go under you barrier or go Into your stomach? Hope you find some clues as to what is happening. Maybe call your Stoma nurse. 

Puppyluv

Thu Jan 28, 2021 9:42 pm

Hey Shannon, I have been irrigating successfully for many years. Irrigation is a wonderful tool to manage your colostomy.

You have taken the first , big step to Ostomy freedom ! Now, if you decide to maximize your irrigation experience I would suggest you minimize your fiber intake along with carbohydrates. I eat a high protein, low residue diet and can tell you from experience it works very well. This diet has many benefits, it will increase your " clear time" , lower your cholesterol , triglycerides, blood sugar and produce less gas. It has also been linked to some very positive results in combating Parkinson's disease. 
while it's a very easy diet to stay on because you don't have to be hungry, the early stages require you break your addiction to carbohydrates......giving up bread and pasta is not easy !

Good luck if you decide to give it a try.  Regards mmsh

 

Fri Jan 29, 2021 9:04 am

I don't understand the concept of irrigation . I have an ileostomy. I never heard of irrigation to it . Is this something I'm supposed to be doing ???

Fri Jan 29, 2021 9:35 am
Ritz wrotei:

I don't understand the concept of irrigation . I have an ileostomy. I never heard of irrigation to it . Is this something I'm supposed to be doing ???


Irrigation can only be done with a Colostomy. It is a process of inserting water into your stoma to flush it out. Having done that, you can wear just a patch or cap instead of a pouch because you do not have output in between irrigation's. That takes a little while because your Colon has to become trained. 
It is a life changer for those that can do it. 
Puppyluv

Fri Jan 29, 2021 12:10 pm
Puppyluv56 wrote:


Irrigation can only be done with a Colostomy. It is a process of inserting water into your stoma to flush it out. Having done that, you can wear just a patch or cap instead of a pouch because you do not have output in between irrigation's. That takes a little while because your Colon has to become trained. 
It is a life changer for those that can do it. 
Puppyluv


 Puppyluv.... OH WOW ,that's amazing .I appreciate the explanation. That sounds favorable for those that can do it . Kind of like keeping the poop in there until you need to get it out ,and no pouch ! Yes,unfortunately I'll be toten my bag forever but I'm owning it . I've even sewn cute lightweight covers for it if I ever want to strut my stuff ! Thankyou so much ...I always seek information. Ritz

Fri Jan 29, 2021 3:33 pm

I have been an irrigator for 20 years and can eat pretty much what I like. Healthy and unhealthy.

I would have thought a diet change wouldn’t cause a stoma to “withdraw”?

Most of your bowel is still there.

Maybe something else is at play?

I could be wrong.

My suggestion would be to seek some professional advice.

 

Good luck.

 

V.J.😷

 

 

Fri Jan 29, 2021 8:07 pm
Ritz wrote:

I don't understand the concept of irrigation . I have an ileostomy. I never heard of irrigation to it . Is this something I'm supposed to be doing ???


It was definitely a game changer for me and is the reason that I still have my stoma.  I had and probably still have the option to try reversal, but to many risks that I don't feel I need to take.  It'll be me and Lucy hangin' out until I'm done on this Earth.

Fri Jan 29, 2021 8:18 pm
Puppyluv56 wrote:

Hi sunny, 

I do irrigate. Have not had that happen to me during irrigation. My diet definitely affects my output but not my stoma. Maybe those that have had this will pipe in. It has been talked about quite often but not sure is has been talked about relating to diet. Curious to hear. You could go back and read some topics about Prolapsed stoma. Is this what is happening? Does it just go under you barrier or go Into your stomach? Hope you find some clues as to what is happening. Maybe call your Stoma nurse. 

Puppyluv

Hi Puppyluv,

I don't have a prolapsed issue, it just hides just below the barrier at times.  If I were to remove that barrier I can get to it just fine.  Maybe I need to see about changing the type of barrier I use.  There are days I'll just wait until I have easy access...which is ok if I don't need to be somewhere.  It just keeps things interesting!!

 

Sunny

Fri Jan 29, 2021 8:26 pm
mild_mannered_super_hero wrote:

Hey Shannon, I have been irrigating successfully for many years. Irrigation is a wonderful tool to manage your colostomy.

You have taken the first , big step to Ostomy freedom ! Now, if you decide to maximize your irrigation experience I would suggest you minimize your fiber intake along with carbohydrates. I eat a high protein, low residue diet and can tell you from experience it works very well. This diet has many benefits, it will increase your " clear time" , lower your cholesterol , triglycerides, blood sugar and produce less gas. It has also been linked to some very positive results in combating Parkinson's disease. 
while it's a very easy diet to stay on because you don't have to be hungry, the early stages require you break your addiction to carbohydrates......giving up bread and pasta is not easy !

Good luck if you decide to give it a try.  Regards mmsh

 

Hey MMSH,

Totally agree, irrigation is a wonderful tool and I've done quite well with it until my diet change.  I mean, it still works, but just a bit more challenging for some reason.  Thanks for the diet information, but unfortunately I'm working on reversing the dysbiosis in my gut, so plant-based, whole foods it is. :)

Shannon

Fri Jan 29, 2021 10:12 pm

Shannon,

Yep,  your barrier sound like it is shifting. Playing hide and seek with you can be frustrating on days when you don't have time to play! Lol I use the Convetec two piece appliance and like It more than any I have tried.( I started to say I "Love" it but cannot bring myself to actually say I love an Ostomy pouch!) I like the Coloplast pouches but hate that click thing. I mess them up and cannot burp the pouch very well and then cannot get it back together. The barrier works well though.  The Convetec barrier has the soft webbed material as an outter layer and the inner barrier is secure.  Also the way the pouch attaches, I can burp on them on the go without a thought! Lol

Sounds like some sample request may be In order for you! 
good luck! 
Puppyluv

Tue Feb 02, 2021 5:10 pm

I have been irrigating for 8yrs + and I'm so happy I found out about it online. It was never mentioned by Dr or nurse. I do have to be careful with high fiber and high output. I really want to juice, do smoothies, and shake powder vitamins but it defeats the benefits irrigating. I can't imagine my quality of life if I were still wearing a bag. I would recommend it to anyone with a colostomy.  God Bless my fellow Mates.

Larry

Tue Feb 02, 2021 7:39 pm
charleston_sunny wrote:

Hey MMSH,

  Thanks for the diet information, but unfortunately I'm working on reversing the dysbiosis in my gut, so plant-based, whole foods it is. :)

Shannon


well I admit I didn't know what dysbiosis was, so I looked it up.... I still don't know what it is  !!

Can I ask what was the reason for your Ostomy surgery ? Anyhow, best of luck and keep us informed . you never know who may read these post and find the exact solution they seek.  Regards mmsh

Wed Feb 03, 2021 3:53 pm

Hello,
I have been irrigating every day for almost 3 years now and as long as there is consistency in our diet and eating at fixed meal times you will not have any problems. I have always said that irrigated our stoma is like children: It takes consistency to succeed in doing something good with them ..... lollll. So if you changed your diet, maybe it's normal? Myself I would like to diet because I need to lose a minimum of 30 pounds before my operation because I have a hernia and it is getting harder and harder to enter the cone, but since I do not wear no more collar and bag (I wear a cotton pad and a tegaderm film) I don't dare change my diet :(

Danielle 

Quebec, Canada

Wed Feb 03, 2021 4:01 pm
mobass510 wrote:

I have been irrigating for 8yrs + and I'm so happy I found out about it online. It was never mentioned by Dr or nurse. I do have to be careful with high fiber and high output. I really want to juice, do smoothies, and shake powder vitamins but it defeats the benefits irrigating. I can't imagine my quality of life if I were still wearing a bag. I would recommend it to anyone with a colostomy.  God Bless my fellow Mates.

Larry


Hello Larry,
I also no longer carry a bag. And I have never been told about irrigation, neither doctor, nurse, nor enterostomal therapy. Now I irrigate directly on my knees in front of the toilet and as soon as my 6 cups of water have entered immediately everything comes out directly in the toilet.
30 minutes and everything is almost done. What are you wearing to protect yourself? I wear a round cotton make-up remover and a Tegaderm film.

Wed Feb 03, 2021 4:59 pm
Shitt Happens wrote:

Hello,
I have been irrigating every day for almost 3 years now and as long as there is consistency in our diet and eating at fixed meal times you will not have any problems. I have always said that irrigated our stoma is like children: It takes consistency to succeed in doing something good with them ..... lollll. So if you changed your diet, maybe it's normal? Myself I would like to diet because I need to lose a minimum of 30 pounds before my operation because I have a hernia and it is getting harder and harder to enter the cone, but since I do not wear no more collar and bag (I wear a cotton pad and a tegaderm film) I don't dare change my diet :(

Danielle 

Quebec, Canada


Tegaderm film is my go to. 😁

Wed Feb 03, 2021 6:29 pm
Shitt Happens wrote:

Hello,
I have been irrigating every day for almost 3 years now and as long as there is consistency in our diet and eating at fixed meal times you will not have any problems. I have always said that irrigated our stoma is like children: It takes consistency to succeed in doing something good with them ..... lollll. So if you changed your diet, maybe it's normal? Myself I would like to diet because I need to lose a minimum of 30 pounds before my operation because I have a hernia and it is getting harder and harder to enter the cone, but since I do not wear no more collar and bag (I wear a cotton pad and a tegaderm film) I don't dare change my diet :(

Danielle 

Quebec, Canada


hi Shitt Happens,

 

Love the name!!  I'm pretty sure my finicky stoma is related to diet change, but it's ok.  Some days it's good and other days it's acting like an child wanting candy and momma says NO...lol.  I'm hopeful it will all work itself out in good time.  I just need to be patient.

Shannon

Wed Feb 03, 2021 6:38 pm
mild_mannered_super_hero wrote:


well I admit I didn't know what dysbiosis was, so I looked it up.... I still don't know what it is  !!

Can I ask what was the reason for your Ostomy surgery ? Anyhow, best of luck and keep us informed . you never know who may read these post and find the exact solution they seek.  Regards mmsh


MMSH,

Sometimes I like to use big words...ha!  Dysbiosis is just a bad gut, those gazillion little microbiome aren't happy because they aren't getting the right nutrients.  Unfortunately, that leads to disease.  I have colorectal cancer, that's how I got Lucy, hence the reason I'm so interested in healing my gut.  Interesting enough, 70% of the cells that make up the immune system live in the gut wall and...the other critical factor is the gut/brain relationship.  Can you see where I'm going here???

Shannon

 

Wed Feb 03, 2021 6:50 pm
mobass510 wrote:


Tegaderm film is my go to. 😁

Like this one i use?? Do you use a cotton pad also? 







Mon Feb 15, 2021 11:45 am
mild_mannered_super_hero wrote:

Hey Shannon, I have been irrigating successfully for many years. Irrigation is a wonderful tool to manage your colostomy.

You have taken the first , big step to Ostomy freedom ! Now, if you decide to maximize your irrigation experience I would suggest you minimize your fiber intake along with carbohydrates. I eat a high protein, low residue diet and can tell you from experience it works very well. This diet has many benefits, it will increase your " clear time" , lower your cholesterol , triglycerides, blood sugar and produce less gas. It has also been linked to some very positive results in combating Parkinson's disease. 
while it's a very easy diet to stay on because you don't have to be hungry, the early stages require you break your addiction to carbohydrates......giving up bread and pasta is not easy !

Good luck if you decide to give it a try.  Regards mmsh

 

 

hello mmsh,

Yes not easy to remove bread and pasta from our diet, but with which foods do you replace pasta and bread ???

Because I could live on just these two foods and I would be. And for us who do the irrigation, would it be possible for you to post a typical week of your residue-free diet?

I can't find anyone on the net who irrigates their stoma while on a residue-free diet.Thank you.

Thank you very much for your help.

 

Merci Danielle from Québec, Canada :)

Mon Feb 15, 2021 12:33 pm
Shitt Happens wrote:

 

would it be possible for you to post a typical week of your residue-free diet?

 


Perhaps the easiest way for me to advise you is to simply recommend you buy the "the Adkins diet" paperback book. It will give you many choices of foods you can eat. I wish you good luck !

Mon Feb 15, 2021 2:22 pm
mild_mannered_super_hero wrote:


Perhaps the easiest way for me to advise you is to simply recommend you buy the "the Adkins diet" paperback book. It will give you many choices of foods you can eat. I wish you good luck !


Oh, ok thank you i will check this book:) i did not know that the Atkins diet was for us who as a colostomy

Merci!:)

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