Hi - I got my ileostomy 3/7/2022, so I'm about a month out from surgery. I was re-hospitalized with quite an infection, and so now that I'm home again I'm finally beginning to wrap my head around the day to day with the pouch.
My output is not extremely liquid like it was at first, but it's also not very thick. I think this may be the case with ileostomies in general. What are your experiences?
My biggest question right now is how to manage the stoma output during a pouch change. It doesn't seem to matter when I eat - there is always output. Plus, I'm still struggling a bit with proper nutrition since I can't eat a regular diet yet - two more weeks to go to 6 weeks, when they tell me to be bolder in what I try. I want a salad! :) I need to eat small, frequent meals for now.
So far, for a pouch change, I put 4x4 gauze over the stoma and have to have a trash can close at hand as the stoma requires a LOT of gauze to mop up the output. And then of course I'm trying to clean the skin and stoma and prep the area for the new bag, all with only two hands, both of which seem most often to be used to switch out and dispose of poop-soaked gauze. Does this sound familiar to anyone? How do you manage? Are there better ways that work for you with a stoma that always produces poop? So far a home health nurse is providing the additional required hands. But I know people on this forum can do it on their own. I'd love to know how you do it.