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New member

Wed May 11, 2022 2:52 pm
"This is the best website for people with an Ostomy, hands down. So much understanding. Everyone should join."

Hi everyone ☺.  I just joined this group today. I am from NJ. I had emergency surgery 1 year ago and woke up to both ileostomy and colostomy. 

Wed May 11, 2022 2:58 pm

Welcome I just joined as well 

MeetAnOstoMate - 26,936 members
Wed May 11, 2022 3:36 pm

Hi you two.  Glad to have new people. Check out history, ask questions, post some pics.

Wed May 11, 2022 3:42 pm

Welcome both of you. You can find a lot of good information here.

Wed May 11, 2022 11:31 pm

    I’m sorry that’s how everything started for you. I had a similar circumstance with emergency surgery, and waking up with an ileostomy. I didn’t even know what an ileostomy was at that point. This is a great group, with lots of wonderful information, and belly laughs. I hope you feel welcome here.

Wed May 11, 2022 11:50 pm

Welcome. 

Thu May 12, 2022 5:58 am


RaenotRay wrote:

    I’m sorry that’s how everything started for you. I had a similar circumstance with emergency surgery, and waking up with an ileostomy. I didn’t even know what an ileostomy was at that p...

In that regard I’m lucky that I was working in the job that I was - I was a healthcare assistant on a busy hospital ward. I’d had enough patients with stomas and had to help them with them that it wasn’t this completely alien red blob poking out of my tummy. But of course I found out that helping someone else with theirs is absolutely nothing like managing your own stoma. It was a very steep learning curve, for sure, coz the hospital stay when I had my colectomy was also when I was diagnosed with my UC, and before that I was completely ignorant to IBDs. 💩 💩 

Thu May 12, 2022 7:35 am

Hi Ladies welcome to the site, lottsa good info here and fun people.


Thu May 12, 2022 8:17 am

Welcome! This is a wonderful forum with lots of helpful folks. 😊🌷

Thu May 12, 2022 11:29 am

Welcome new friend, we are all here to help and support. Lots of amazing friends here that care and give great advice. You will learn much more than what your doctors and nurses will tell you. I hope you get comfortable soon. We can be quite the silly bunch too, so we are good for some laughs! 
😇

Thu May 12, 2022 1:34 pm

Welcome to the site we all have one thing in common which is the stoma. Ask any questions and I'm sure you will get lots of answers and support. XX

Thu May 12, 2022 3:26 pm

Hello and welcome!  Emergency surgery lead to my ostomy too, so I can relate.  I am curious though, as you say you woke up to a colostomy and an ileostomy?  I had a colostomy and an ileostomy for around eight months, but that was only after my initial surgery, which gave me the colostomy, was not working for me.  The surgeon gave me an ileostomy and disconnected the colostomy, so only the ileo was working.  He did not go back in and remove the rest of my large bowel and close up the colostomy site until it was clear that the ileostomy was working well for me.  He did this so that he could have reversed it if the ileo was not successful.  I'm not clear on why you would have both stomas after just one surgery, and wonder why the surgeon did that?  I'm assuming that only one is working, right?

Anyway, as others have said, there is lots of support, friendship and fun on this site, so glad you found us!

Terry

Sat May 14, 2022 4:24 pm

Welcome to Our Gang ...ask and thou shalt recieve ..☘💚

Sat May 14, 2022 10:44 pm


RaenotRay wrote:

    I’m sorry that’s how everything started for you. I had a similar circumstance with emergency surgery, and waking up with an ileostomy. I didn’t even know what an ileostomy was at that p...

I was very aware of what it was but never thought it would happen to me. I was taking care of a client that had the ileostomy. But I was just changing her bag, not really knowing all I know now. Now I wish someone was changing mine!

Sat May 14, 2022 11:19 pm


delsontro2 wrote:

I was very aware of what it was but never thought it would happen to me. I was taking care of a client that had the ileostomy. But I was just changing her bag, not really knowing all I know now. No...

     Haha, right? It’s so daunting at first. Your body is changing, and there are a million choices for supplies. Once you find the right equipment, and get into a good routine, you’ll start feeling more normal. Remember to laugh, and give yourself lots of grace. You are definitely not alone. ❤️

Thu Jun 30, 2022 4:38 pm

welcome and glad you found the rest of us....don't be afraid to reach out say hiya and chat away....ur not alone we are all gere for ya....smile on

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