Does anyone have EPI and are taking creon

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rosebud621
Feb 04, 2023 3:34 am

I have a illeostomy recently diagnosed with EPI and starting on creon .  Anyone else on creon ?

Rose Bud 🌹
Feb 04, 2023 3:58 am
Very helpful

I also have an ileostomy and was on Creon for about 2mths before my insurance changed and had to switch it to Zenpep(Have no idea why Zenpep is extremely expensive ) comapred to Creon .When I had surgery done they only thing they had was Creon in the hospital, going back to it I had no problems.They will say take it 30 mins before eatting .I found if I don't and take it right before I eat I have no problems. I've been taking it for the past two years.Just make sure you drink plenty water with it. 

Posted by: HungryHamster

Hi,

Not blowing my own trumpet or anything, but I was at the healthiest I had ever been prior to getting UC symptoms. I was eating very healthy and exercising 6/7 days. I'd love to know if any lifestyle factors affect UC, but I suppose I'll have to wait until they figure out what causes it.

I've been trying to occupy myself by being in contact with friends often, but some days I am really not in the mood and find it hard to drag my mind away from what ends up being a mountain of thoughts. I suppose it's all part of the learning process and I'm sure it'll happen less with time. This website has been great so far. It's great to be able to write this sort of stuff down and chat with people that understand what's going on. For that, I thank everyone on this website.

Thanks,

Hamish.