I had a colostomy placed 3 months ago. I lost a third of my body weight and now look like a walking skeleton. The doctors can't figure out why they had to cut out 9 cm of what they call "concrete," and they say I'm lucky to be alive. Funny, I rarely feel lucky. Three hospitalizations later and running out of medical days, I wonder what my future holds. Will I die early? Will I leave a young child behind? Will I wind up homeless? They say it's reversible but keep pushing the date back. I cry a lot now and hate dealing with the bags, the insurance, the money lost. I get sick of everyone saying I'm lucky to be alive. I know I should focus on the positives, but that's hard for me. I've always been kind of a pessimist and this certainly hasn't helped my outlook. Please tell me I'm not alone. I feel alone.
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Create an account and you will be amazed.
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Read our tips to help you prepare for air, ground, or cruise travel with a stoma.
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Are you a caregiver for a child with an ostomy? In the summer months, this can become more challenging, thanks to heat, humidity, water activities, and travel plans.
Learn more about caring for children with an ostomy on vacation.
Learn more about caring for children with an ostomy on vacation.