Meditation Benefits and Daily Commitment Concerns

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sherrybear
Jul 23, 2011 1:14 pm

I have been told that meditation would be good for me. I did go and learn how to do it, just don't know how good it is to do. So if there is someone there who can help me make up my mind, I would love to hear from you. I was reading that you have to do it every day. Well, what happens if you can't and you have to be somewhere in a hurry, and you skip it? What will happen then?

mooza
Jul 23, 2011 2:43 pm

Sharom, go for it. Give it a proper go, darlz. What's the problem? Okay, I will ask my friend at work. I will print this page and show Nancy. And I will get her to give me as much info as you need. If I could, I would do it. xxxxx Mooz xx

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Bill
Jul 23, 2011 2:18 pm
Hello sherrybear,
I would like to put my two-pennyworth into this post.
I decided to irrigate long before I went for an ostomy and I told the relevant people this.
The stoma nurse maintained that I should not start irrigating until 6weeks after the op. so that it had time to heal up and I reluctantly adhered to this timeframe.(In New Zealand the stoma nurse said it was 6months! but I can't believe that!)
I've been irrigating for a few months and it has been just as I expected(I was irrigating before the ostomy, so the sensations and management issues di not come as any surprise)
Irrigation, like most things in life are personal choice. (if it is deemed appropriate) Apparently only 2% of ostomates irrigate in the uk whereas in other countries it is considerably higher.
The Stoma nurse canme to my house to see that I had the right set-up and to show me what to do the first time. She poked her finger into the stoma and twisted it round to tell me the best position to hold the cone in placefor maximum water outlet.( Very useful to know)
Back to my own experiences.
Basically the irrigation process is one of pouring water into the stoma via a cone connected to a plastic bag hung at about shoulder hight (I use about 2 litres (4&a bit pints) If there is faecesimmediately withion the stoma it is sometimes a bit more of a job to get the water past without it evacating. However, once all the water is in it's just a matter of sitting and waiting unbtil the natural evacuation takes place down an irrigation sleeve which extends into the toilet( for me this is often about 20 minutes) but I wait for an hour to make sure that all that is coming out has done so. Whilst I am waiting after the 20 minutes I take the irrigation sleeve and seal off the end putting the bottom end under my belt sos that it is higher than the stoma and the other end and no leakages can occur. I usually walk around, do stuff or just watch TV until I am sure that nothing else is likely to come out. After that I put on a small bag and the job is finished. At present I am irrigating every day because I am working and don't want any discharge durin the day. However. I have been for two days without any need to irrigate. With regard to you question about waht happens if faeces comes out.- Well, if you didn't irrigate, it would come out in just the same way, only much more often.
I had difficulty with the adhesive on the irrigation sleeve which made me sore. So now I leave the bag base-plate on. I cut the plastic bag off it carefully and stick the irridrain baseplate over the one that's still in postion. that works fine for me. The other thing that I didn't like much was that my evacuation comes out with quite a force and splashes backwards and upwards in the plastic tubing. I cured this by inserting a cut off plastic container over th stoma so that the evacuation is guided down into the sleeve without splashback (the container is what our prawns come in!) In order to hold it in place and have both hands free I have another of the same containers on the outside of the plastic holding it in position with the belt tah comes with the stoma protector. It now all works satisfactorily. I did try the Hollister drain but that does not have adhesive and in order to get a reasonable seal it had to be far to tight for me to feel comfortable.
There is a very good utube illustration of irrigation by an Australian guy. - I just Googled 'stoma irrigation' and it came up along with some not so helpful ones.
For my part, I couldn't be bothered with emptying bags 4 to 5 times a day and much prefer one proper session followed by the near certainty that there will be no output for at least a full day. this gives me the relative 'freedom' to do things like bathing etc without a bag. I couldn't imagine not irigating!!
I hope this has been of some help to you in your decision making-
Why not give it a try. It's not going to do any harm and you can always go back to bag changing if you don't like it.
Best wishes
Bill
Sh@tHappens!
Jul 23, 2011 4:18 pm
Hi Sherry,

I think Bill is making it sound a lot harder than it really is! Here in the states, we have a lot more options for irrigation products than they do in the UK. I would suggest going to the discussion boards on the United Ostomy Association, UOAA.org, and checking out the irrigation forum there. There is a wealth of information already there and a lot of great, very helpful people on there who will answer any question you might have for us!

Good luck!
Kellie
Bill
Jul 23, 2011 5:33 pm
Sorry if I rattled on a bit and made it sound difficult. It's NOT! I'm with Kelly & Mooza - Look it up and then just go for it.
Best wishes
Bill
 

Staying Hydrated with an Ostomy with LeeAnne Hayden | Hollister

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noona
Jul 25, 2011 7:01 pm

I started irrigation two months ago. I love it!! It takes 50 minutes every day. I could go for two days, but I just like to make sure, so I irrigate every 24 hours. I would be very sad if they told me to stop irrigating. I don't know why it's bad for you. Well, even if it's bad, I will still irrigate, lol. All my life being good, no drinking, smoking, and working out almost every day. I still got cancer :( ...I am not scared anymore. I would do anything that my heart desires. Good luck :)

sherrybear
Jul 25, 2011 11:42 pm

Thanks to you all, I do believe I will try it out. It does sound good, and not changing bags all day. So I'll let you all know how I do and thanks again. And Mooza, my dear friend, I'll wait to hear from you and Nancy, thanks to you too.

mis010fit
Jul 25, 2011 11:41 pm
Are there any circumstances where one shouldn't irrigate? Is it only an option, or something that people have to do? Do you have to be taught how to do it? What do they do if an ostomate cannot irrigate? Sorry for all the questions, but I've been having more problems with less output. I have a Hartman's Pouch, due to pelvic outlet dysfunction/obstruction. No colon was removed. I don't have a colorectal Dr. anymore.
Irishgirl
Jul 26, 2011 2:16 am

I'm confused. This is the first I've heard of irrigating. I have a fairly new ostomy and I just empty the pouch when I go to the bathroom and I replace it twice a week. Am I missing something important?

mooza
Jul 26, 2011 4:11 am

Irish girl, you can only irrigate if you have a colostomy. Me, with an ileo, cannot do it, and no one has to; it's if you want and can do it, colostomy only. But I think if you had a colostomy from colitis, Crohn's, diverticulitis, they don't want you messing around in case you tear the bowel. Look it up on the web. I have a stoma; I can't do it. Ileo just isn't going to happen. We empty so much watery stuff. Colostomy is like you go to the loo when, and hopefully, you did before the operation. If you go 2 times a day, they say you probably empty twice a day too. Irrigate colostomy keeps you from having to go; you flush the intestine. xxxxxxxxxxxxxxxmooza

mooza
Jul 26, 2011 4:11 am

Oh Sherry, if you can't do it, try the drainable pouches. You won't need to change, just empty at the bottom. Closed bags, well, they are closed. XXXX Chat ya later, Mooza.

Sh@tHappens!
Jul 26, 2011 1:50 pm

Mooza is right, you do have to have an end or sigmoid colostomy, but there are a few I know of that have other types that are successful. I have an end colostomy and Crohn's, and I irrigate every 48 hours now (started every 24 then changed after my bowel was trained) and only wear a 4 stoma cap to protect my clothes and just in case. They hold about 1/4 cup. I now have a lot more freedom from leaks and skin problems! You really have to be patient because it does take some time to reach the coveted 24 hours clear, but once your bowel is trained, there are people that go up to 72 hours clear! That's why I suggested going over to the UOAA discussion boards because they have a whole forum dedicated just to irrigation, and there are instructions and pages of posts to read through. I'm not trying to have you leave this site, I just think you will find a lot more info there so you can find out if it's for you! It really has changed my life! Kellie

eily
Jul 27, 2011 9:10 pm

Hiya all, I have irrigated in the past and found it worked okay for me, but (there is always a but, lol) I got a hernia next to my stoma, (nothing to do with the irrigation I might add). I had an operation in February to fix the hernia. I now have another hernia; I seem to be prone to them. My question is... Can anyone tell me if I can still irrigate with a prominent hernia that I sometimes get pain from? ...Eily xx

sherrybear
Jul 27, 2011 11:02 pm

Eily, I also have hernias, and they showed me how to irrigate knowing I had one, so my guess is it is okay. By the way, Eily, this makes my 33rd hernia. I also had surgery on February 8th; the doctor said it wouldn't come back again, well it did, and two others with it. I have one on the left side of the stoma, one below, and one on the right side, and I'm still going to irrigate, I do believe. I also do get pain from them, but check with your ET nurse; they can tell you more than doctors. SHERRYBEARxxx.

sherrybear
Jul 27, 2011 11:02 pm

I do have another question for you all, how do you know when it is time you have to irrigate, after you did? How do you know when to put back on a bag and are you afraid just to wear a cap? Thanks again to you all, you all did help me out, xxxxxxx

mis010fit
Jul 28, 2011 8:50 pm

Please help! Is it a necessity to irrigate, or a preference? Do you actually have to be shown how to do it? I know that when another Dr. put a finger in the stoma, quite a ways in, I got very sharp pains. I have the Hartman's pouch colostomy. None of the colon was removed. The surgeon never explained anything to me, before or after surgery. And I can no longer go back to her.

Carolw
Oct 10, 2011 2:37 am

It's a preference. I got in touch with my stoma nurse as I had no idea that this was an option until I joined this site. She was with me the first time I tried, just to talk me through things and to make sure all was okay and that I was inserting the cone correctly. She didn't touch my stoma. I wish someone had told me that it could have been possible to irrigate and not have to have found out 12 months after my permanent colostomy, as I'm sure this would have helped with the depression I suffered after my surgery. I call it my ring of confidence, a ring around my butt after sitting on the loo, confidence I have knowing that I'm poo-free and no smelly wind for 24-48 hours depending on what I eat or drink. It takes a while, but as each time you do it, you get better at it; you just have to give it time. It's changed my life. x

Bill
Oct 10, 2011 5:14 am
Hello Carolw,Just a short note on the 'ring of confidence'cuased by the toilet seat. I found it very uncomfortable to sit on the normal seat for the period of irrigation so I cut a short piece of contiboard 9x17 to fit over the toilet and put an improvised cushion on it. Not only do I not have the 'ring' but it is so much more comfortable and gives a greater space for the irrigation tube. Further to that, when all is done, I can remove the board with the tube still in the loo and wash the tube down with without moving away. I find this much more 'convenient'. Best wishesBill
Carolw
Oct 11, 2011 12:04 pm

That sounds like a good idea, Bill. I will have to get my husband to do a bit of DIY. This is what I love about this site; there's always someone here to help. Thank you, Bill x