I feel so fortunate to have found this site! I am amazed by the support and information. I am new here, and in the process of recovering from surgery. I was hospitalized and diagnosed with C-Diff last July 2010, and was given prednisone in large doses. I had major prednisone withdrawal issues but was getting better and dealing with liver disease stuff when I started having lots of pain. Although I had UC and took meds, it rarely bothered me. On May 11, 2011, debilitating pain caused me to go to the ER where I learned I needed life-saving emergency surgery to remove my colon because of free air due to perforation in colon. I was hospitalized for six weeks after the surgery, due to staff infection and then found out I had diabetes due to the steroids so I had to learn about insulin/diabetes management. I had been so positive, grateful, and hopeful initially. Did my own wound care, blood sugar monitoring, and insulin shots, and ostomy stuff. I even named my stoma Lola because Lola certainly gets what she wants...
In the last month, I have been super exhausted (can't just rest on the couch, need to sleep during the day - most of the day), and fearful that my body seems so fragile, and about whether I will ever be strong enough to get on my surfboard and get in the water or hit the slopes, or camp! Angry and tired of dealing with the accessory!
I would really like to hear how you have made it through post-surgery issues of fatigue/exhaustion/frustration/fear. Has anyone else hit this wall at 3 months post-surgery? All doctors, blood tests, X-rays, MRI say my healing is on course and things look normal. I stopped prednisone about 3 weeks ago and am almost weaned off the insulin so these may be reasons I am exhausted. Having pain too in abdomen, like I did 100 sit-ups and my core/back muscles are sore. Also need tips and tricks for the best accessory for swimming, hot tub (is it possible?). Any wetsuit issues? I am thinking I may have to take up stand-up paddleboarding instead of surfing.
Thanks for any feedback.