My dealings with ostomy bags

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1062
slippery5442
Nov 03, 2015 7:10 pm

Well, it was Convatec I used for a long time, but I found my skin was being ripped apart when I tried to remove the bag. Slowly, I would peel back and had maybe 4 to 5 leaks through the years.

Now I use Cymed, which is wonderful. No rashes, no pink, red skin. I hardly ever use any smelly stuff to mask the smell, once in a while some Febreze. I would like to thank all the people for their kind words.

My new journey is going to be wonderful, full of hope and dreams. The winter months keep me from doing a lot. I fell down 3 times last year and

I don't bounce back so easily anymore. But I'm going forward, keeping on smiling, and letting the good Lord help me...thanks again...

Mrs.A
Nov 03, 2015 10:56 pm

Oh, you're so right about not bouncing like we once did, but as long as we get up and try again, we have a chance of getting somewhere :)

Posted by: Primeboy

Hi Mike and all. I am not sure how panoramic my perspective really is as my peripheral vision shrinks with each passing year. I can tell you that when I came to this website six years ago I was truly ;impressed by the positive attitudes of so many members, especially the younger folks who refused to let their ostomies define who they were or what they would become. I also came to appreciate that having an ostomy is not the same thing as having a disease. Pardon ;my pun now, but ostomies and cancer don't belong in the same bag. One is a solution, the other is a problem. Celebrating National Ostomy Day ;is also well outside my comfort zone. That's like celebrating National Wheel Chair Day. Come on!

I think there is a ;need for improved ;public awareness of ostomies, but I am not sure how that's best done. There ;remains ;some social stigma attached to our situation, and it's acutely felt among our young. We need to get out of the dark ages on this issue, but not by going 'in your face' to everyone else. I think Bill and NDY are 'spot-on' when it comes to telegraphing the right message to friends and family. People will know how to react when they ;see ;how we accept the cards we were dealt. I also appreciate the contribution some people here are making to this effort through their publications.

On a personal note, my son has been suffering from ulcerative colitis for years just like I did. I am very concerned because people with UC are at a higher risk for colon cancer. Years ago my GI told me to get annual colonoscopies to be on the safe side. I am glad I did because he eventually found pre-cancerous cells which led to several surgeries and my becoming an ostomate. Since then I have always ;conveyed a positive attitude to ;my son about wearing a bag because it has kept me alive to enjoy many more years with my loved ones. I think he got the message. We both go to the same gastroenterologist in NYC and get scoped on the same day. Father and Son moments!

Someone once wrote that our children are the letters we write to the future.

PB

Bill
Nov 04, 2015 1:58 pm
I would like to concur with you both about not bouncing quite so well but as Mrs A says it's all about getting up again and keep going - Best wishesBill