Hello Ostomates
I recently joined this site and sent out a request to hear from anyone who was double-bagged like me, i.e., has a colostomy and urostomy. Given the rarity of that situation, it was nice to hear from a couple of members who could fully relate. It's not my intention to brag about how special I am, but now I want to put out another call for a condition that is apparently even more rare. It's called phantom rectum, and it's as bad as it sounds. It's just like a person having a leg amputated, then feeling pain in the leg that's no longer there. So, every pain imaginable that a rectum could cause is created in my brain and it feels 1000% real. I will spare you the nasty details, but the pain in combination with the location made it feel like torture. Eventually, by chance, I was referred to a neurologist pain doctor who tried an off-label opiate use to treat heroin addicts. It helped, then with the addition of smoking marijuana (legal in Canada), I got to a point where life was worth living again. So, if there is anyone else out there who has experienced my misfortunes, check in. Maybe my unusual combination of meds might be useful to others.
Best in the new year
Toppermost
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 37,494 members who truly understand you.
It's not all about ostomy. We talk about everything.
Many come here for advice or to give advice, others have found good friends, and some have even found love. Most importantly, people here are honest and genuinely care.
🛑 Privacy is very important - we have many features that are only visible to members.
Create an account and you will be amazed by the warmth of this community.
37,494 members
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Hollister
Returning to work after ostomy surgery should not be rushed.
Check out our 4 necessities before getting back on the job, and our other workplace tips.
Check out our 4 necessities before getting back on the job, and our other workplace tips.