Hello Ostomates
I recently joined this site and sent out a request to hear from anyone who was double bagged like me, i.e., has a colostomy and urostomy. Given the rarity of that situation, it was nice to hear from a couple of members who could fully relate. It's not my intention to brag about how special I am, but now I want to put out another call for a condition that is apparently even more rare. It's called phantom rectum, and it's as bad as it sounds. It's just like a person having a leg amputated, then feeling pain in the leg that's no longer there. So every pain imaginable that a rectum could cause is created in my brain, and it feels 1000% real. I will spare you the nasty details, but the pain in combination with the location made it feel like torture. Eventually, by chance, I was referred to a neurologist pain dr. who tried an off-label opiate use to treat heroin addicts. It helped, then with the addition of smoking marijuana (legal in Canada), I got to a point where life was worth living again. So if there is anyone else out there who has experienced my misfortunes, check-in. Maybe my unusual combination of meds might be useful to others.
Best in the new year
Toppermost
Advertisement
By answering seven simple questions, let us help you find the CeraPlus™ Ostomy Product you need. Once complete, you will be offered a FREE sample and further support from the Hollister Team.
See what works for you!