I'm new here and just trying to figure the site out. I currently have an illeostomy, I had had one when I was younger and then got a j pouch. Fast forward many years and my jpouch failed and I had my surgery in January. Feeling alone at times, so thought I would make a post. So hello!
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Hiya Daisy. I've seen some lovely photos of Nova Scotia. If you have any questions, just post 'em on the Forum and you'll get answers aplenty.
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Hi Daisy!!!
A lot of people here have felt alone at one time or another. It doesn’t seem like a lot of us have many that “get us” locally.
Hope to hear more about you and your story 😃
Hello Daisy. Failed j pouch here also that led to vertebral bone infection, my surgery was in September of last year.
Hi Daisy
There are plenty of us here in your same position. I am very sorry about your J-Pouch.
I have had my ileostomy for almost 50 years. It took a few months maybe 1 year to get use to it. Sometimes, I still think how weird is this? But recently, on this site I saw many famous people that have a pouch. That idea might not help you but I had to think of how it saved my life and if I didn't have it done that many years ago, I wouldn't have lived my life and be here writing to you. I have lived a wonderful life so far and I wouldn't change anything for what I have.
Best of luck and write back if you feel alone.
Connie
Welcome to the club Daisy! Lots of us ileostomates here, and we're all here to support and help each other as much as we can. Lots of laughs too. I hope you will stick around!
Terry
p.s. I visited Nova Scotia a few years ago, loved it and can't wait to go back. I see you're from Halifax, just love that city! I'm in Vancouver, about as far away as it's possible to be and still be in Canada!
Hi Daisey
How are you doing
I have a colostomy since March 2019 it is permanent
I would love to chat with you and exchange thoughts
Gordon
15-44% of J pouches have problems. 10% fail (poop out). You did not fail. The pouch did not work. I assume the reason for your J pouch was ulcerative colitis. You are lucky that you could give a the J pouch a try. You have a lot of company here at this website with ileostomates.
Hi daisy welcome aboard, you have a friend in most parts of the world 🌎 on this site and that's what makes it so special on here. Looking forward to seeing your posts. XX
Hi Daisy and Welcome! I’ve experienced something close to a failed J pouch but no worries, I had a failed continent pouch and I’m still here. There are a lot of good people here to help in any way. Hope you’ll stay a while.
Just wanted to say thanks to everyone for the kind words. If anyone would care to chat, send me a message. Makes me feel better there are all of you who can relate.
Reply to gentlejohn
I was very lucky to have my j pouch for 30 years. I had no idea that was a long time until the doctor told me so many have problems. It was from UC. Apparently down the road I'll be able to try another one although the thought of the surgeries does not make me feel good.
Reply to eefyjig
I was devastated at first, but now I guess it is what it is and I have to be thankful I'm here. Did you have a hard time?
Reply to crappycolondiaries
I know one person locally which kinda surprised me but I guess ya never know who has or had one. I had a conversation with my BF's friend about him having one though. I didn't want anyone to know but he had gone through the same thing and had an ileostomy for 11 months, ten years ago. We talked about it yesterday a little bit. Different for me. When I had one as a child (had an ostomy and then a reversal years ago) I would cry just thinking someone who knew me knew I had one. This site is great though....so many people coming together that have their life changed. Everyone is very nice that I have come across as well....
