I'm new here and just trying to figure the site out. I currently have an ileostomy. I had one when I was younger and then got a J-pouch. Fast forward many years and my J-pouch failed, and I had my surgery in January. Feeling alone at times, so thought I would make a post. So hello!
Daisy2023
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HenryM
Hiya Daisy. I've seen some lovely photos of Nova Scotia. If you have any questions, just post 'em on the Forum and you'll get answers aplenty.
Words of Encouragement from Ostomy Advocates I Hollister
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crappycolondiaries
Hi Daisy!!!
A lot of people here have felt alone at one time or another. It doesn't seem like a lot of us have many that "get us" locally.
Hope to hear more about you and your story.
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Bob 48
Hello, Daisy. Failed J-pouch here also that led to vertebral bone infection. My surgery was in September of last year.
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Redondo
Hi Daisy
There are plenty of us here in your same position. I am very sorry about your J-Pouch.
I have had my ileostomy for almost 50 years. It took a few months, maybe 1 year, to get used to it. Sometimes, I still think, "How weird is this?" But recently, on this site, I saw many famous people that have a pouch. That idea might not help you, but I had to think of how it saved my life. If I didn't have it done that many years ago, I wouldn't have lived my life and be here writing to you. I have lived a wonderful life so far and I wouldn't change anything for what I have.
Best of luck and write back if you feel alone.
Connie
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delgrl525
Welcome to the club Daisy! Lots of us ileostomates here, and we're all here to support and help each other as much as we can. Lots of laughs too. I hope you will stick around!
Terry
P.S. I visited Nova Scotia a few years ago, loved it and can't wait to go back. I see you're from Halifax, just love that city! I'm in Vancouver, about as far away as it's possible to be and still be in Canada!
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Ea5ygoing
Hi Daisy
How are you doing?
I have a colostomy since March 2019. It is permanent.
I would love to chat with you and exchange thoughts.
Gordon
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gentlejohn
15-44% of J-pouches have problems. 10 fail (poop out). You did not fail. The pouch did not work. I assume the reason for your J-pouch was ulcerative colitis. You are lucky that you could give the J-pouch a try. You have a lot of company here at this website with ileostomates.
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Caz67
Hi Daisy, welcome aboard. You have a friend in most parts of the world on this site, and that's what makes it so special on here. Looking forward to seeing your posts. XX
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Superme
Hi Daisy and welcome! I've experienced something close to a failed J pouch but no worries, I had a failed continent pouch and I'm still here. There are a lot of good people here to help in any way. Hope you'll stay a while.
Daisy2023
Just wanted to say thanks to everyone for the kind words. If anyone would care to chat, send me a message. Makes me feel better there are all of you who can relate.
Daisy2023
Reply to gentlejohn
I was very lucky to have my J-pouch for 30 years. I had no idea that was a long time until the doctor told me so many have problems. It was from UC. Apparently down the road I'll be able to try another one although the thought of the surgeries does not make me feel good.
Daisy2023
Reply to eefyjig
I was devastated at first, but now I guess it is what it is and I have to be thankful I'm here. Did you have a hard time?
Daisy2023
Reply to crappycolondiaries
I know one person locally, which kinda surprised me, but I guess you never know who has or had one. I had a conversation with my BF's friend about him having one though. I didn't want anyone to know, but he had gone through the same thing and had an ileostomy for 11 months, ten years ago. We talked about it yesterday a little bit. Different for me. When I had one as a child (had an ostomy and then a reversal years ago), I would cry just thinking someone who knew me knew I had one. This site is great though... so many people coming together that have had their lives changed. Everyone is very nice that I have come across as well....