I had a colostomy since birth due to Hirschsprung's disease, which was made permanent. In 2014, we noticed it started to retract and pull away from the skin. I just recently saw a colorectal surgeon, and it looks like surgery is the only option after all the products used in the past were failures.
Can I ask if anybody has had refashion surgery, as this will be my first time to my knowledge going under, and I wanted to hear people's experiences?
- SpicyRamen
If I am understanding your question, yes, I have had one; it is not uncommon. I had a prolapsed stoma. They just cut around the stoma, pull a little through, snip it off, then reattach it to the abdominal wall. It is not a huge process, but the diameter of your stoma will be larger afterward.
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Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients struggling to adjust.
We described this group as folks with every kind of ostomy, some for days while others for decades, but all willing to share what's worked for them with the caveat that every individual is different.
We described the most valuable element as feeling like you're not alone in this. That really piqued their interest, and they wrote down the link. It seems they had a few people in mind that might benefit from the community and thanked us for telling them about it.
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Thank you, that has eased my mind. Fingers crossed it is as simple after the scan.
