Regulating Your Ostomy

Okay, so I have noticed when I stay on a regular eating schedule my ostomy is predictable and the output is very average. But if I skip a meal or eat later in the morning then my ostomy goes nuts for the rest of the day. Like today I had fasting lab work and didn't get to eat breakfast until about 9am. For the rest of the day my ostomy (Marvin) was just liquid and high volume. (1,400cc just in the afternoon alone). (Over 2,000 before dinner.) This is with 2 imodiums mind you. Does anyone else notice this happen to them? Can a schedule that rarely varies really cause this much disruption. (My typical all day output is 1,200 to 1,400). This has happened to me a few times before when I didn't eat on my usual schedule, so I was wondering what other people's experiences are. (I have a ileostomy if it helps to know).

Lee

Hello Lee.

I have a colostomy and irrigate but still have to keep to a regular routine, otherwise the output is unpredictable. ( I was going to say 'all over the place' but that is a different story!)
For many reasons, our family get togethers involve going out for meals in the evenings and I don't get home to sort my stoma out until quite late (10:00pm), whereas my regular time is 6pm. It takes about two days to get back to 'normal' in terms of output predictability.
I feel sure that different people have different experiences of this, but this is mine!
Best wishes
Bill

Maybe your ostomy is new but do you always measure your output? Just wondering as I’ve never paid any attention to how much I have, they did measure mine while in the hospital but that’s it. 🤷‍♂️

I don't really pay attention, I just know there's a change when I change my eating habits and I deal with it. Maybe, like you said, your stoma makes up for lost time and gushes. I know anything liquid other than water, like decaf coffee and OJ, fills my bag with a lot of liquid very quickly. I HATE fasting but the good thing to come out of it is less output. I really can't pay attention to more than that or my head will explode! 😜

I don't pay much attention either.  Unless I feel something unusal when emptying the bag.  The Hollister pouches I use can hold alot of output.  When I feel it getting heavy is when I pay attention to it.  

Just like everyone else, when you change your routine, your stoma changes as well. If I have a few adult beverages, my output is slower and thicker. It takes me a day or two "recover". You'll learn more and more about your stoma as you eat differently. 

I've never measured my output either, or worried too much about it.  I do notice differences when I change my eating routine though, which doesn't seem too surprising.  As long as you are prepared for any changes, it shouldn't be a big deal.  I can be caught off guard though, like the other day when travelling home by car ferry.  I knew my dinner was going to be late in coming, and they had hot chocolate in the ferry cafe, so I thought, "why not?".  Well, I returned to my car with my hot chocolate and drank it, only to have my pouch almost instantly fill with very loose output.  I had to go back upstairs to the loo, supporting my pouch with my hand to prevent it from ripping off my skin, it was so heavy!  Note to self, "next time you drink hot chocolate, be at home, or near a bathroom!". 

Terry

Hi, Terry~

I remember reading some time back that an ostomate experienced a very fast stomach-to-pouch transit time with warm/hot liquids versus cold, which didn't seem to be as problematic for him.

Be Well~

Lily17~

Hi Lily, (long time)

There might be something to the temperature thing, but I don't have the same reaction with coffee or tea.  I don't think it's the chocolate either, as I consume my fair share of that too, with no noticeable effect.  Who knows?

Terry

Me exactly!

It may have something to do with being a newbie.    One of my first visits to the surgeon after my surgery he asked me how many milliliters of output I have daily - wait what?!!!  How would I know this - he said didn’t they send a measuring container home with you?   Looking under a pile of medications v-I-o-l-a there it was!  I think I used it once.  How can one get back to normal with sooo many pills and instructions 🥴 - depending on what I eat and drink there is no set amount of output ole’ Seymour Vesuvius may share.  jb

I also have this problem at, maybe 10 weeks (what is time?) ileostomy. The issue for me is that I go from a manageable amount of thick output, to emptying a full bag (like 350mL) every hour. Someone's it can fill in 20 minutes without me eating or drinking anything.

It's an absolute nightmare. I can't go out because public restrooms are few to none (thanks, CoViD), and even at home I can't focus on a task because I keep having to empty. It's worlds worse than my situation before the surgery.

I don't know whether this is true or myth. I read some time ago that cold water goes directly to the SI and warm or hot water goes directly to the colon. Without a colon I guess that would mean hot water/ drink goes directly to the bag.

You’re blaming Covid for no public bathrooms? 😂 Maybe during the height of Covid some were shut down but not years later. 

I have a permanent colostomy and if I eat too late or too much it basically messes my whole day up because I’m in the bathroom all day and night ! It’s better to keep on schedule if you can but I know sometimes you can’t always so good luck 

AlexT,

I always measure my output because I am on an Imodium schedule. The amount of output I have in a day predicts how much indium I will take the next day. For instance if my output was below 1,200 I would take no Imodium the next day and if my output is 2,200 I would take 2 Imodium in the morning, 2 at lunch and 1 at dinner. If my output goes over 2,400cc I am supposed to call my doctor. I got this script for Imodium at the hospital and my doctor wants me to always (or almost always) measure and take the medication accordingly. 

Lee

Bill,

I have a ileostomy. It is like that for me too though, it takes a couple days to correct itself when it gets off. If I don't stay on schedule the output is unreal. 

Lee

eefyjig,

When I fast I don't get less output, I actually get way more output and usually more liquid. 

Lee

bballman54,

My stoma seems to throw a royal tantrum if I change my schedule. It shoots out a high volume of liquid output for the rest of the day and sometimes into the next day as well. That is just if I eat 3 hours later then normal.

Lee

Terry,

Do you think it was the sugar or the caffeine in the cocoa that stimulated your ostomy?

Lee

Justbreathe,

I don't mind measuring if I am at home, but I can't do it in a public restroom. I am trying to learn to eye ball it, but so far I under-estimate every time. They gave me 2 measuring cups and I keep one in each bathroom in my house. (Although in the bathroom company would use I keep it tucked away in a cabinet.) I just got used to doing it and now it is routine. I am 5 months post surgery (for my re-location surgery) so after doing it for 5 months it is just set in my head this is how I am supposed to do things.

Lee 

runjumpclimb,

I can see where that would be frustrating. Have you tried a high-volume bag? I started out with high volume bags for about 2 months post surgery. I use regular ones now and empty 5 to 8 times a day depending on how active my stoma is being for the day. At first though I had very high volume output.

Lee

stevenledlow98,

I do try to stay pretty much on schedule because that makes for regular output. However there are just some times when I can't eat at 6:30am like normal, or I can't grab a lunch by noon. It is those times that it seems like my stoma throws a hissy fit. 

Lee

My stoma has been very rampant I have been put on tablets to slowdown as most my liquid coming out there too and I getting dehydrated I have stoma and ileostomy my are the kray twins as I call them 

Hi there...i find this with coffee! It goes straight through me ( illiostomy). Its crazy.