Small gap between stoma and skin

Replies
22
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416
Kirstickle

Hi. Newbie here! I had my ileostomy in November so it's still very new to me. While I was still in hospital I noticed a small hole between my stoma and skin where one of the stitches had been. I spoke to the stoma nurse at the time who said it was normal. Now the hole has grown a bit, I'd say it's about 0.5cm long.  Is this still considered normal or should I be concerned and get it looked at

It's not causing me any issues by the way :)

Cplumber

Like they say no problem no problem 🤣🤣🤣🤣 jk never heard that. If your stoma nurse says all good, I wouldn’t lose any sleep over it.

Good night

Cplumber 

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Beachboy

Well.... keep an eye on it.  If it turns red or gets bigger.  Consult with a doctor.

Beth22

Sounds like you have mucocutaneous separation .. where the skin separates away from your stoma.  Do you notice an odor with it ? And I would just have your surgeon take a look. Not wound care they have no idea what they are talking about  sad to say but it's  Always a good idea when things arise to call your surgeon. 

7dragonflies.hm

Hey. Well I'm not sure if it's the same thing but I may have had something similar, about a week or so after I got my loop ileostomy. I was doing a bag change and scrutinizing the thing and noticed what I called a hole. I pointed it out to the home health nurse that was there and she said it's fine. I didn't feel like it was though - I was used to my little round colostomy that I had prior to the loop ileostomy that replaced it and the shape is different - so it was hard for me to decipher. Anyway, it wasn't causing any problems either. If I recall correctly, the nurse said something about because it was new or something. I don't think it's grown, in fact it may not even be there now come to think about it. (It's been since 10/23 that I got it.) And I think it took a bit for the stitches to dissolve too. But, and this is a big but, like these lovely peeps said already, keep an eye on it and if anything call the surgeon's office to explain and see what they say. ☺️

 
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Ben38

I can only speak from my own experience when I first had my stoma all the around it opened up it looked like a moat around it Dr said it was still very secure as there sewn in layers it healed up by itself I think it was about 6 weeks the wound did feel really sore much worse than wound on stomach. If your worried speak to your stoma nurse again to put your mind at rest.

Kirstickle

Thanks everyone! I'm in the UK so here, one does not simply 'contact your surgeon ' unfortunately 😂. I have a follow up with my stoma nurse that should be due soon, so I'll ask her. It makes sense that they are sewn up in layers so that's put my mind at rest somewhat!

Beachboy

Wow Ben38,

I would have freaked out a bit.  Having a new stoma is already upsetting after surgery.  Glad yours healed up ok.

Beth22
Reply to Kirstickle

I'm sorry it's not like that there .. why can't you contact your surgeon there? Kind of the point to have a doctor to begin with for complications, problems and issues that arise.

Kirstickle

That's the NHS for you Beth. Awesome in all kinds of ways but you don't have direct access t your surgeon unfortunately! I can contact my Stoma Nurse though thankfully

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IGGIE

Get a second opinion, it's not normal so get it fixed. 

gentlejohn

Let your surgeon check it.

IGGIE
Reply to Cplumber

Really ?

Beth22
Reply to Kirstickle

I am really sorry it's not like that.  what happens if you had an emergency and had to have surgery ? 

Kirstickle

If there was an emergency I would have to go to A&E (ER). Hopefully I'd get waved through and not have to sit in the waiting room for hours and hours...

harry113
Reply to Cplumber

You need to get it checked by a Dr. and not a nurse. Feces can get into the hole and cause infection.

Beth22
Reply to Kirstickle

I will bluntly and honestly say that that is horrible. You should be able to have access to your doctor and surgeon that's what they are supposed to be there for . Ostomy nurses are not going to cut it unfortunately. Issues and complications with the stoma are way out of there scope. 

Kirstickle

I'm calling my stoma nurse tomorrow, I don't have an appointment with my consultant until January, so hopefully she will be able to get me in quicker to see him if she thinks it's necessary. Your replies are making me think it is necessary! I appear to have acquired a couple of granulomas near to the hole so it definitely does need looking at by SOMEONE!

IGGIE
Reply to Kirstickle

Demand that you need a Doctor not a Nurse. 

Beth22
Reply to Kirstickle

What I am saying is when you have issues that arise with a stoma ,they are to be looked at by your doctor. A stoma nurse does not have full knowledge of all things stoma and things are out of there scope that is meant for your surgeon/ doctor to take care of and look at .And they should not be the ones handling your care freshly out of surgery and issues arising. So why can't you call your doctor and make an appt or tell them what's going on ? I am truly  curious. Your health is important and I believe that you should have the right and access to your doctor

Mark1

Hi I had some of my stitches co.e loose stoma nurse said it was fine I was still unsure I went to a&e and asked to see a surgeon I was rushed through a&e and taken to seau (surgical emergency assessment unit) where a surgeon was only too pleased to look at it and reassured me all was OK I would ask to see a surgeon in seau it will put your mind a rest hope this helps good luck 

amymariefred
Reply to Kirstickle

Something similar happened to me and I agree about mucocutaneous separation. My wound/Ostomy nurse suggested “crusting” and adding a barrier ring. That helped tremendously. Took a few appliance changes to heal completely. I wish you the best!

PatriciaSz

I had a mucutaneous separation with my first ostomy. It was bigger than yours.  My surgeon had me use hydrofera blue.  They make it for stomas too. I put it on, the covered it with my wafer.  Somehow, even though I would get leaks from it, it closed up in a couple weeks.  I hope you follow up with your surgeon.

Now I have a "surprise" ileostomy.  I developed a stomal fistula between the stoma and the skin. There is output from it so I can't cover that up. Make sure it's not a fistula.

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