If you've had your ostomy for over 50 years you probably had it as a child or at least a young adult. I had mine when I was 12 (after two years with ulcerative colitis). Looking back, I'm wondering what the long-timers feel has been the good and the bad, gratitude versus regrets. 🤔.
For me, I was healthier post-surgery, and resumed normal growing. And while not worried about being close to a bathroom anymore (although I really only had two "accidents" in two years), the process of figuring out the bag protocol while emerging through puberty was daunting!
The surgery, while probably crude by today's standards, has required little follow-up, and so deemed a success.
My regrets and complaints: first, even though I was a child and not entitled to "informed consent" I could have and should have been more included in the discussions. Things were done to my body with no prior warning, having been signed off by my parents. (I was at a teaching institution and now realize some of these procedures were therapeutically unnecessary, and I have PTSD as a result). I only had an abstract understanding of the surgery (I was never shown any pictures or given an example of what the "appliance" was). And the surgery wasn't done on an emergency basis, but I was not ready for what I saw when I woke up post-surgery.😬☹️
Second, the psychological component of treatment was inadequate. I was seeing a therapist (psychiatrist, but not on any psychiatric medications) but she was not a good fit and there was no post-surgery counseling or any offer of post surgery counseling If ever I felt I needed it.
And so physically I've done about as well as could be hoped for, but psychologically . . . not so much.
I hope things are done differently today for children.
Thank you for letting me vent here. 🙄