Reply to osto888
Hello again Osto888
Now able to access info I spoke about earlier :-
Suggest you try these Dansac products .....
I have found the data and my samples for you:
I have two type of pounches which may help with your non round stoma ..... [both oval wafers and both drainable]
PRODUCT REF3023-15 [this one has the starter part of the hole in the middle of the oval wafer]
The Nova Life System.
TRE barrier technology. Leaflet ref A/S LOD0175 - explains the cliical stuff behind why it works
and
Dansac Nova Life 1 Midi Open [different type of backing but still oval]
PRODUCR REF9230-10 [this one has the starter part of the hole near the top of the oval wafer]
The difference being, you can centre your stoma cut out near the top or the middle ......
Please let us know how you get on.
Like I said - if no go then perhaps the oval shape is not a helpful option.
HOWEVER the TRE type of backing worked for me at one point when I was experiencing a similar situation as you describe - the sucking in [but in my case we are talking trama site having had the TIEs device actually cut out of my abdomen/bowel - BUT nonetheless - the sucking situation idicates [to me - AND I AM NOT A MEDIC !] does indicate there may well be a [viod ie a pocket in some form within your deeper skin layers ..... Obviously I also agree that scar tissue - particulaly scar tissue which is in the the process of "bonding again" [forgive the non medical term - but after the number off surguries I have had that bonding [pulling into the actual new scar tissue as in the scaple site .... is also relevant.
I might encourage you to just get the stoma area CT'd .... 'cause it may be a pocket of fludi ..... PARTICULARLY AS YOU HAVE PUT ON ANOTHER BAG THE OTHER SIDE - I SUGGESTED THIS SO YOU COULD SEE FOR YOUR SELF THE 'SOURCE' OF THE PULLING .... and this confirms it is the drawing of the incisional work - not the skin sensitivity per se.
Like I say I am not a medic - only you and your team can see the 'live' situation.!
Seriously I would get into the shower - no bag on ..... and try a few very gentle yoga 'tenses' - not strtches as such ....... have the water really warm, and then in veyr slow slow motion keeping your kegs straight and arms straight run them up to the celining and down to your toes - in a very slow repeated rolling movement.
IMO experience - particulalry when caerrying lettle fat - it is not always easy to 'feel' subtuaneos fluid pockets. Its not as though you are carrying extra weight.
When the pulling comes on - when first putting on the bag - [after you have blow dried] is your skin / stoma area 'hot' or luke warm or quite cool?
Also, after cleaning the stoma - when promoting it to to become pert when about to the bag on - does the pulling/sucking feeling/situation begin then?
Oh yes - and do you warm your bags/backing plate/wafers - or are they put on at room temperatiure [straight from your bathroom cupboard?
[When you have had your Salts 'sunburst' backing ones on, which are v.thin and finely 'spalyed' at the outer broken arc, do you get a separated 'ring' of grey residue left upon spraying the appliance off - ie can you just use the spray without pulling or freeing manually to promote a peel off?]
You may find these little perifferal Q's strange - but I ask as I use a variety of bags and sometimes separtae plates too ...... although generally, I am able just to wear the Salls Comfort B now as a one piece - but not in the heat or when flying or deep seated low driving if doing long mileage [400m plus] [all different seating positions - and belts / harnesss .... but even in regular 4x4 cars in the heat and longer holding under pressure before emptying can cause a back pressure with me [not a blow out - BUT THE BACK PRESSURE ACTUALLY CauSES THE STOMA TO BAK FEED AND AS SUCH THIS IN ITSELF HAS A 'Sucking' feel [but then I have also different surgical layering too ..... but it is comcommitant with BACK PRESSURE! -
Your pain on straightening does sound like an internal adhesion kind of thing - UNLESS its back pressure against an internal fluid pocket [and it is a simple proceedure to have this "puctured" and drainined within radiology - they can guide straight it - and once drainined the intence local pain of the pocket area beneath the abdominal skin [feelis likeits in about an inch or so - depending on where the inflammation has gathed. Anyhow - simple to drain - BUT GET IT DONE - IF THAT IS WHAT IT IS - sooner rather than later.
Don't mean to 'magnify' an issue that may not exist - BUT if it is not ONLY back pressure - an your Pain on standing to my mind suggests it may not be - then get checked out under the scanner. Your surgeon may well be able to 'feel' ----- I can sometimes feel under behind the stoma some weeks after surgery - but an "internal" fluid or other gathering - which can build up some time after surgery - may explain what MAY be going on.
GOOG LUCK - Hope its just simply a process of maybe a little under weight stressing of suture sites - keep the show and gentle exercise - it will help.
BW
Jayne