Do any Members on this site have first hand experience following their surgical interventions - after extensive division of challenging adhesions, resulting in bowel puncture holes, mended, or missed - whereby you have gone on to develop a connection between your bowel and the skin which is known as an enterocutaneous fistula? Because I have not had firsthand experience of managing such an undesirable outcome having fecal material seepage or fully blown leakage?
I ask as I have been given the possible outcome senario as a result of impending, necessary reparative surgery.
This is the second frank question I have tablled following my Surgeon's clinical letter, which of course I need to understand fully before signing my informed conscent.
I am in awe of the openness and willingness of sharing on here - and have learned - fast - to do the same .....
It has already made a personal differende for me since being open following my experience of the TiIES Implant.
I will always speak fondly of Meet An Ostomate for, even those who dont 'do' social media ... can become connected and supported in their personal health and emotional understanding by sharing here and having the freedom to vist and also maintain their privacy too.
I iterate my heartfelt thanks!
Hence my requirement for firsat hand PAtient experience along with the emotional consequences of dealing with its day to day management.
I really do appreciate the time and willingness to share personal detailed understanding - which I will be so thankful to receive BEFORE THE EVENT
If anyone prefers not to discuss the detail on open forum I quite understand ......
VEry specific links would also be of help ..... Some research one is able to access in this respect ..... but it is the personal tips and variation plus, of course the complications that one does not encounter upon main medical sites.
Thank you so much, in a degree of anticipation.
I know of one lady who runs her own blog site and other social media - Thomas The Stoma, and Thomas Stoma - she has thoughfully shared her experiences and the Journey of her own surgeries .... so there is related information and awareness tino be found with her resources - but not quite closely enough associated with my own vulnerable medical circumstance.
So yet again may I ask for frank replies so one may be fully prepared ..... for it is over 45 years ago since my bowel perforated when I was a much younger woman - and technologies and treatments have now moved on - hopefully!