ENTREPRENEURIAL ASSignment - maybe

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Justbreathe

Although I am happy with my current “apparatus “ I tend to be curious about other appliances…mostly outspouts.  Occasionally I will request product samples from various companies. 

Seems to me these suppliers or someone with nursing degree skills who sports a stoma and has entrepreneurial tendencies could start a new successful business.  Develop a company for training folks to become an on-site “Stomafitter Expert”.  These well-trained Stomafitters would make house calls to assist in individual home set-ups and most suitable, effective and healthy well-suited fit.  This would eliminate months, days and hours of grief and expense to ostimates.  Maybe some type of disability insurance to help this cause?

It appears most of us are released from our surgeries and sent home to fend for ourselves.  I know I was and have read many similar stories on this site.  A “Stomafitter”  would be trained in all equipment available, how to use it, and how to fit it properly.  These specialists would then be on-call for those in need of assistance - not only new ostomates but those who have experienced many changes over time and now require assistance in proper fitting and appliances to get the ASSignment (so to speak) done.  yeah, this could be accomplished thru the internet but would be much more valuable with personal visits.  Forgive me, my head is full of strange ideas or maybe possibilities? …time to water the plants…jb

kittybou

Great idea!!!!!

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Bill

Hello JB.
Thank you for a very interesting concept.
I have long since felt that there are more effective ways of ‘fitting’ stoma devices so that they work more efficiently and effectively. 
I do believe that the devices we use should be ‘bespoke’, to fit each individual and their circumstances
 To this end, I am consistently experimenting with DIY stuff to improve on what we already have on offer from manufacturers. Of course, the result is that I have a whole range of different devices for my use, which may or may not be suitable for others.
One of the concepts that I had was to use 3D printing to make devices to fit precisely, but it was (rightly) pointed out, that this sort of personalised producing and fitting, would not be ‘profitable’.
This notion of ‘profit’ from other people’s misfortunes, takes me into the realm of politics, which we generally try to avoid on this site.
I have hundreds of rhymes addressing these sorts of issues but have refrained from posting them here. 
Best wishes
Bill 

Ben38

It's always good to try new things I've been using my current system for around 10 years but always try any new samples that come out.

I'm in the UK we are very lucky over here and spoilt in a lot of ways with choices we have all are company's that supply ostomy products have there own stoma/ostomy nurses that will visit us at home if we're having any problems and just for a stoma health check up  if we ask for one and bring a good selection of samples we can try with them (in the UK it's recommend to have a stoma health check up every 12 months just to see if there are any products more suitable for us and to pick up on anything before it becomes a problem) ....wish it was the same service for everyone all over the world. 

Beachboy

In the US... lawyers would do everything they could to find the tiniest flaw in your stoma service... then lawsuits would commence.  Behind every great idea is a lawyer waiting to pounce.

 

 
Words of Encouragement from Ostomy Advocates I Hollister
warrior

Hello Osties...yeah I was thinking about what JB was talking about and you know she's basically talking about a well-trained stoma  nurse which I believe we do have here in the United States..

it's sad that maybe elsewhere there's no such thing as even a stoma nurse but I have found that there are a license clinical  nurses that do house calls through certain agencies and I believe you have to contact the agency maybe through the hospital to get in touch with them..

 

I have a friend who does that and she goes around and she helps people as a visiting nurse.  with whatever needs they have and she told me one time her patient  was somebody with the stoma and she said she wasn't allowed to even touch it because she's not certified but the people felt very comfortable with her and they said go for it and she helped the  patient replace the appliance..

she could have lost her license in doing that she admitted to me..

so you know there are people out there who really want to help but can't and then there's people who can help who don't... so I think what people need to realize as we have stoma nurses that need to be trained,   may be better educated if it's their job to provide us with the products and services and I guess maybe depending on your country..and insurance .. you can be very lucky at finding one... so I think the stoma nurse sums it all up and her qualifications will give you an idea whether or not she knows her shit or is talking shit..

By the way,  in case nobody noticed we definitely have two nurses who have Stomas  on his website.. you may want to reach out to them ..or make a note of this..they are very knowledgeable they have posted tremendous information about care and products and you know sometimes as a community we need our own to help ourselves and this is a great start just having the two nurses that we could just send a message to in regards to anything ...

so we might need to build on something like that if we're a community.. the  want to improve things for other people who especially don't have the access to a stoma nurse..

so we should think about that I mean I think it's within our capacity to do this so why not??

AlexT

JB, when I first got mine and went in to my ostomy nurse for a checkup, she took my bag off, cleaned everything, and applied a new one in about 2 minutes. I told her that she could make a lot of money doing house calls helping people change their stuff and teaching them what to do. Of course she never did it but I agree, it could be a business opportunity for the right person. 

Justbreathe
Reply to Bill

Things that can NEVER be resolved…..Religion and Politics- - - no amount of air (hot air or otherwise) should be wasted on either.  Nor should any of your brilliant written poetry …..Just Breathe

Justbreathe
Reply to Ben38

AMAZING !!!  This is exactly what I am talking about and is needed by all ostomates and kudos for companies providing such a service.  Makes one want to move to the UK except for me as I would and do shiver me timbers (and other parts) when the temperatures dip below 80 degrees…. jb

Justbreathe
Reply to warrior

I have been to see 3 very nice, very knowledgeable stoma nurses in my 3+ stoma years.  None of which even suggested  I could stay in my own home and have a traveling trained Stomafitter (nurse) come to my house.  Our stomas and shitbags (sorry got carried away) are very personal to us and a short review with a stoma nurse in an office or hospital situation is something I will not do.  The struggle is real.  It is not only impersonal it is stressful and time consuming and in some cases a hardship.  There seem to be many on this sight with issues that could best be resolved by a home visit as opposed to driving somewhere for a brief one on one consult.  Attention to detail for the perfect fit and all available options is what is needed - kinda like the old Fuller Brush Man!  (a bit of levity here for those that might have been around back then- fyi  I was very young just sayin’).  
The nurses I’ve seen are employed by hospitals and you must go there for any help and they apply whatever the hospital uses for all stoma patients.  My idea was mainly directed at having a training school for “Stomafitters” then having multiple suppliers employ them and provide them with free samples to take into the home for review and fitting.  Possible sales increase for them.  
Like I said just one of my mindwandering crazy thoughts - they do entertain me.  Alex is right - possibly a good opportunity for someone to tackle and build a “Stomafitter Conglomerate” providing training programs for Excrement Management -  turning waste into a profitable resource…jb

TerryLT

Great idea JB,  Here in Canada I think we are in pretty good shape.  When I was discharged from hospital, I was offered the services of a nurse who would come to my home to help me with my appliance if I was not feeling confident in doing it myself.  I also saw an ostomy nurse on a regular basis as an outpatient for the first six weeks or so.  That nurse is still available to me to this day, and I have often contacted her via phone or email with problems that have come up.  As far as I know, all the hospitals have ostomy nurses available to the public as needed.  But having someone work with you to 'customize' your fit would be fantastic.  I can't imagine most healthcare systems supporting something like this as it would cost a fortune.  There is so much trial and error in finding just the right products, along with the fact that stomas can change a lot in the weeks and months after surgery.  There would be some who could afford to pay someone with entrepreneurial spirit to take on a job like that, but many who could not.

Terry

warrior

I wanted to add something to my original post above and I think it might help ..

 

the thing is , we have mobile mechanics to come out to your vehicle with the vehicle you wish to potentially buy to check it out right ? and you pay them for the service that comes out of your pocket..  then we have interpreters who will actually come to your job site to help interpret for meetings fortunately by law,  the company has to pay for The Interpreter and yes these people both travel and I'm sure they have huge liability risks that they have to consider when they start charging individual people..like us.. and if you just happen to know a friend you might get a very very deep discount..

as far as a traveling stoma nurse??  I thought I'd just throw that out there and just see if by law possibly a stoma nurse could be reimbursed by the government like through I don't know the ADA law .. something for that nature where we would need some politics involved ..

I think to get that thing rolling  some fat bastard in Washington has to  be introduced..educated...etc..

so it won't be easy ..maybe it is possible?? that's a very good idea.. it's a huge undertaking ..so I was just thinking out loud and I wanted to post that..

and we all know until a representative in Washington has a son or daughter or a baby who's afflicted with an ostomy,  only then will we start hearing about it in the news and only then maybe you'll start seeing it make some press.

Bill

Absolutely!

IGGIE
Reply to Justbreathe

G-Day JB,  Same as Bill, in Australia we can get a Stoma Nurse to call and help you at no cost and they are there for you 24/7. We are lucky but someone had to have started requesting it. As Warrior said until some high ranking assholes son gets a Stoma nothing will happen. Start a group and keep hounding the Bastards. Regards IGGIE

Happy-but-Newbie

In Spain that's what stoma nurses do...you meet them before surgery (if it's not an emergency one) to help you choose stoma site, then they teach you how to manage changes while you're in the hospital, then you see them at intervals after you have been discharged...

I went on insurance covered hospital and assistance, but Public Health service does the same...

Does not take away each and every question or doubt, but provides good mental safety...

 

warrior
Reply to Happy-but-Newbie

oook.everyone..lets move to Spain.🤠

RyaninWashington

Hy my name is Ryan and i agree that specialists should know what they supposedly specialize in and of course if they aren't an ostomate they don't know much. My wocn sent me away with mirsa by my stoma and said i can't help you. Luckily the emergency department at the same hospital intervined. I tore my skin off while changing my pouch and realized i was in jeopardy. Im ok now but will remember incompetence

 

Justbreathe
Reply to RyaninWashington

The home health care nurse that came to my house did not have any clue about ostomies- my husband was present at first change time at home and he knew every bit as much from one hospital lesson as this home health nurse.  Altho I did have a nurse come to our home it was no help at all - so our insurance company (Medicare) could have saved that money spent.  jb

MOST52

This topic s interesting for me bc I would like to have a stoma nurse come to my home 2x weekly for a change-out.  I have severe neuropathy in my right hand and maintenance of my ileo becoming a problem.  Also at 89 I think about end of life issues.  I will need someone to come several times daily to drain my pouch in the time between changeouts.

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