Questions re - Ileo Reversal

Replies
6
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697
jmakrizak
Feb 27, 2024 10:51 pm

So our teen just had ileostomy reversal five days ago. Her bowels moved some 24 hours after surgery and she passed some gas, but at the three-day postop mark she experienced frequent vomiting and nausea. She is feeling much better today - very little pain and no vomiting. The surgeons ordered her off all fluids two days ago due to the vomiting. She is feeling well enough to walk lots on the hospital floor but hasn't passed any gas for 3 days. Have any of you experienced anything similar postop? How long did it take to consistently pass gas? She is just on IV fluids now.

CrappyColon
Feb 27, 2024 11:31 pm
Very helpful

Hi, what type of ileostomy reversal did your daughter have? Does she have any colon left? Have they said anything like ‘ileus'? Are they letting her have anything by mouth like ice? Reversal surgeries aren't a one size fits all since people have the original surgery for various reasons. It sounds like your daughter's symptoms are trending in the way you want them to go at this point. Are you at a children's hospital?

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Because it's a global community, there's always someone here to lend an ear, provide advice, and just hold my hand if that's all I need.

Sure, there's also a lot of camaraderie, fun topics, and laughs, but the main reason I come here is for the total acceptance I get from the members. No one else on the planet could possibly "get" what I'm going through, not even my loving husband or supportive family.

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jmakrizak
Feb 28, 2024 1:12 am

Hi, yes, she has all of her small and large bowel. She had a loop ileostomy placed due to a perforated appendix that caused damage to her terminal ileum (end of the small intestine). She had her ileostomy bag for a little over 5 months. The doc just visited—daughter is 19 but in a children's hospital—and he said it's not uncommon for it to take this long for her bowels to get going. So we are feeling better that things are okay. She has virtually no pain and walked several laps on the hospital floor today. We just need her to start farting! They are letting her have gum and hard candy.

CrappyColon
Feb 28, 2024 2:12 am
Very helpful

Isn't it funny sometimes what we can get excited about as a parent? If they're letting her do gum/candy, they think things are trending in the right direction too. With abdominal operations, it's really common for the intestines to be slow to wake up. She has her age on her side too when it comes to healing. I wish I could opt to be in a children's hospital when I have surgeries... I think they get more therapy dog visits too 😉

warrior
Feb 28, 2024 2:31 am

When your teen feels better and wants to hear from people who "get it," we are here for her.

I might add, there are, so far to my knowledge, two other teens on here.

Another grandparent regarding her grandson... and another 18-year-old female. Her age group will connect easily.

That's what it's all about.

 

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IGGIE
Feb 28, 2024 9:37 am

She's only days into the reversal and it takes time for it all to wake up and start working right, so do as they say and give it time. She is in the right place if she needs attention. Regards, IGGIE

Sdukes2jor
Jul 03, 2024 3:54 pm

I too felt ill right after the reversal. I was vomiting and feeling weak. That was after feeling great in the hospital. This was my experience after the ileostomy surgery too. Sometimes it is a combination of "after surgery" body trauma and pain meds. It lasted about a week and then so much better. I hope your daughter starts feeling better soon.