Hi guys,
It's now nearly 5 months since my AP resection and colostomy. I am still in a lot of discomfort sitting and can only manage to drive for about an hour before it becomes too much. Has anyone had this slow recovery and can offer any advice? I have tried all types of donut cushions.
I have no problem with my colostomy bags or stoma.
G-Day Allan, you have just told me why you still have pain; it's because you're using a donut cushion. They pull your cheeks apart and stop your butt from healing correctly. Throw the donut away and just get a flat soft rubber pad. They should have told you that when you had the operation. Regards, IGGIE
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Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
Like Iggie said, a donut cushion is about the worst thing for you. Healing takes time and is very individual.
Hi Allan. I'm 3 months out from Barbie butt surgery and still have an open wound, but I did buy a nice pillow for when I'm able to sit on my butt again. It was a little pricey, but I've read it's well worth it.
thecushionlab.com
“Purple” is another seat cushion that post-Barbie butt patients have sworn by.
Purple.com
I hope you find some relief and comfort!
Hi, I had the same surgery many years ago. I also had that issue. Has anyone suggested a sitz bath? That's what they call it. You put a basin on top of the toilet seat and sit in there with warm water to ease the pain. You should consult the doctor regarding this issue. I hope you feel better very soon. Don't get discouraged; this too shall pass.
Hi, I forgot to mention asking the doctor if they still use the salve that has zinc in it. That's what I was recommended. It doesn't hurt to ask. Good luck.
I am 8 weeks out of surgery and still have issues with my "Ken Butt." Still not good enough to go back to work. The doctor did say to put diaper rash cream on it last week. The stuff with zinc in it.
I'm 12 weeks out and also nowhere near close to being able to return to work, which stresses me out immensely! I did get approved for short-term disability, but I'm supposed to return next week. I'll be putting in a request for an extension; unfortunately, there's no guarantee of job security though. I hope your job is understanding and offers these options for you as well.
Best of luck to you, Rancher!
Don't know what you do, but not having job security would be stressful for sure. I was almost at the max of my short-term disability when I went back to work. I'm very fortunate; my employer and union gave me short-term disability, railroad sickness benefits, paid my union dues, paid my health insurance for 6 months, etc. Plus, according to every healthcare provider I dealt with, I have top-of-the-line health insurance because all I've ever paid are copays for everything. After 6 months, my health insurance was only $100/month for up to 24 months of being off work, luckily I only had to pay for 3 months.
Good lord! I wish that was the case for me! Our insurance is just awful. It's $1,200 a month for 3 people with a $9,000 individual deductible. After that's met, the insurance pays 100% for everything… except hyperbaric treatments 🤦🏼♀️
Your employer is the shit!!
