Dear all,
Is anyone else struggling with ileostomy bag availability?
For many years, I have used Hollister 41cm drainable bags. I have now been advised that these are no longer made by the manufacturers. These have been replaced with much smaller bags, which means nighttime emptying has become much more frequent.
Thanks for reading, and any info would be much appreciated.
Hello Mossy.
It is often very disappointing when manufacturers withdraw products that we have been successfully using for some time. However, all is not lost. There are plenty of other suppliers out there who will have similar products and are only too willing to send out free samples for us to try.
Personally, I use Charter Healthcare as a supplier, which is a subsidiary of Coloplast based in Peterborough. Their staff have been really helpful when discussing problems and needs.
That aside, instead of using a 'normal' bag at nights, I use a folded (& clipped) irrigation sleeve, which has an enormous capacity and is easily flushed out and is a great advantage at nights, when I tend to be half asleep.
It's all about experimenting to see what works best for each of us, so don't be shy about asking for samples.
Best wishes
Bill
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This site has been a blessing for me in learning how to cope with and navigate this journey as an ostomate. I have a colostomy as a result of a perforation in my colon since May of this year. I don't know yet if it will be permanent or reversible. The people on here have provided me with so much advice and information about living with an ostomy that I don't think I could get anywhere else. You all have given me hope and a place to come to for support. I still struggle with acceptance, but know that it will come if I am patient. Patience has never been my strong suit! Also, I love all the humor, although it really pissed me off when I first came on here. Thanks to all of you.
What a great idea! Just curious, are you on Medicare, and if so how many irrigation bags are you allowed? I’m on Medicare, ordered an irrigation kit, thought I’d try it out. They only allowed me 2 irrigation bags for 6 months, according to Edgepark, my supplier at the time.
Hello Vanestag.
The answer to your question is that in the UK we tend to be on the NHS (National Health Service) which, as far as I am aware, will supply (more or less) as many sleeves and bags as each individual needs (without charge).
That said, I use my own (DIY) baseplates, which means that I can get several months of wear out of one sleeve before having to change to another. I used to get them to last over six months when I was soaking them in bleach to get the stains out. But, more recently, I have been discarding them when they get too stained and they tend to last about 3 months. As there are 12 in a BOX I have only ever had one box to date and I estimate that the remainder of sleeves will probably last me until 2026.
As for bags, which are 2 piece. The same principle applies in that I attach them to my own baseplates and they last about a month, Largely because I irrigate and, as yet, have have no output land in the bags. The problem with the bags is that they are flimsy and split where they are moved on and off the baseplate (You can see a picture of this splitting on my profile).
I often feel sorry for residents of the USA who do not seem to have a system of medical care that is paid for by taxation and is free at the point of need.
Best wishes
Bill