Urine problems after colostomy? Any solutions?

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supernan
Oct 09, 2011 10:09 pm

Hi, does anyone out there have any experience of urine problems after a colostomy? I had a bladder fistula removed at the same time and just wondered if anybody also had problems in this. The main problem is that it goes absolutely everywhere and I hadn't mentioned this to anybody until this morning when I was moaning to a friend about it, and she used to care for a lady that had the same problem after having the op, so it made me wonder if it was a common problem. If so, any solutions? Thanks for reading, I think I'm just crazy or at least my body is!!

DH
Oct 09, 2011 10:36 pm

Hi, yes I have had problems urinating since my colostomy. But the problem I have is that when I go, I feel pressure as I am trying to squeeze the urine out. I told my surgeon about it during my follow-up with him. He said it could be from having the urine catheter inside of me for the week I was in the hospital. Sometimes people have difficulty urinating afterward. But he told me as long as I am passing urine and it is clear, I have nothing to worry about and the problem should go away eventually.

Posted by: GoinWithTheFlow

Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients struggling to adjust.

We described this group as folks with every kind of ostomy, some for days while others for decades, but all willing to share what's worked for them with the caveat that every individual is different.

We described the most valuable element as feeling like you're not alone in this. That really piqued their interest, and they wrote down the link. It seems they had a few people in mind that might benefit from the community and thanked us for telling them about it.

You know, we can't remember exactly who we learned about this group from, but we're grateful for it every day! Thank you all! 🌻

supernan
Oct 10, 2011 7:18 am

Thanks for that DH. I agree mine has never been the same since the catheter came out, although it was a big relief as I had to keep mine in for 3 weeks. But this problem has definitely gotten worse, but on taking a sample this morning as I think I have an infection, I think it may be that I have another fistula. I am going to get the urine test dipped today and if it is an infection, then I might mention it to the doctor.

rosiemoe
Oct 11, 2011 12:08 am

I've had bladder problems since my stoma surgery 3 years ago. I find that now when I have to go, I really have to go. Also, laughing, sneezing, and coughing are best avoided. I used to get shooting pains in the bladder area, but a scan showed nothing. I also think it's to do with being pulled about in surgery, having a catheter fitted for weeks, and loss of muscle tone due to being cut.
I hope you're feeling better.

Past Member
Oct 11, 2011 5:14 am
Hi - I had an ostomy almost 2 years ago due to anal cancer, so I didn't have previous continuing problems like the Crohn's sufferers do, but after my ostomy I have had leakage problems. I've been trying to strengthen my muscles by doing the Kegel exercises (I think maybe they might be helping?). I do an "Irrigation" every other night, so I get time in my tub as the water drains out to try to do the exercises then!

I was led to believe that it isn't an uncommon side effect because of all the handling and moving around of our various parts when the doctors are inside of us doing their "thing".
 

My Ostomy Journey: Ryan | Hollister

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supernan
Oct 11, 2011 8:09 am

Thanks for the comments, it seems that perhaps it is more of a common problem than I thought. It turned out that I didn't have an infection but was told to keep drinking plenty in case one was just starting! I still think I have another fistula but as I can't have any more surgery I will just be careful to look after it. I just wish I had mentioned it while I was still under the doctors to find out for sure, but I'm sure everything will be fine. At least I have the experience of dealing with one as I had a bowel to bladder one before and that was worse. At least it is only urine coming out this time!