I am feeling sorry for myself today, but I can only allow myself a few minutes to wallow as I have 2 young kids depending on me and cannot afford to melt down. Usually, we do great, but my husband's intentional blockages and hospital trips really trigger an onrush of sorrow and anxiety.
-I am tired of dealing with my husband's colostomy, intestinal blockages, and trips to the hospital today.
I know we are so much better off than so many people, simply to be functional and alive, but still.
-Tired of the constant insecurity and unpredictability
-Tired of the little surprises and always having it at the back of your mind
-Sick of late-night anxiety attacks
-Tired of worrying about all the sick days being taken and if this will affect having a job and being able to provide for our family
-Tired of being scared of getting close to people because they just don't understand what we deal with on a regular basis.
-Tired of physical limitations
-Tired of being consumed with guilt and worried about how this is all going to affect my kids one day and what kind of issues they will get from having a daddy that is often and suddenly sick, resulting in canceled plans
-Tired of having cancer hanging over our heads
-Tired of people being tactful and never asking
-Tired of people telling me about how fortunate we are to have survived
-Tired of secrets
Sigh. Okay, I feel better now. Back to work.
MeetAnOstoMate is a remarkable community of 41,430 members.
“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”
“Our oncologist literally wrote down the link; they said more patients need this website.”
“This place pulled me out of the dark. I went from lurking to living again.”
“At 3am, someone’s awake somewhere in the world. I’m never alone here.”
Every morning when I enjoy my big cup of coffee I scroll through this site and this warm feeling just overwhelms me.
I never post anything (too shy and it feels like I don’t have anything of interest to share tbh) but I sure read a lot of posts from you guys and they are so informative, supportive encouraging and so so full of love and a big dose of humor.
I feel like part of the best family in the world (even though I am just sitting quietly in the corner lol).
I just wanted to share that feeling and say thanks to all of you for being so wonderful.
And also, please keep some fingers crossed for me this week. I have my blood test on Thursday, checking my CA 125 levels. Ovarian cancer reoccurrence fear unlocked again. I hate it!
Lots of love from Sweden
Learn how convex skin barriers work and what benefits they offer.


