Bladder pain after J-Pouch surgery - seeking advice

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rachel_louise
May 22, 2013 11:12 am

Hiya, I had an emergency colectomy last year due to UC. I decided to go for a J-pouch and had my rectum removed. The J-pouch was formed 3 weeks ago (I'll have takedown surgery in a few months). I'm recovering very well, no problems at all apart from really awful pain in my bladder when I go to the toilet. I've been on antibiotics in case I had a water infection from the catheter, but still no better! Did anyone else experience anything like this? I'm scared something may have been damaged in surgery :-/

Past Member
May 22, 2013 3:42 pm

Hey, I have the same issue after each surgery. It's almost like your bladder is trying to pull down or something and it's really painful. Have you had a UTI test done? If not, probably a good idea because if you don't have one, then taking antibiotics would do no good. For me, it took about 1 to 2 months for the pain to go away. I hope it goes away faster for you. In the meantime, there is a medication called Pyridium that will make things a bit more comfortable for you. Beware though, it turns your pee bright orange. Kinda freaky but, it always helps me feel better until things actually heal.

C.

Justbreathe

MeetAnOstoMate website turned out to be a lifesaver for me. I say this because, for me, this ostomy journey was a devastating event both physically and mentally.
Here, I found folks who understood my feelings even better than my family or friends could. Only a fellow ostomate can understand how you really feel.

Information sharing is key, as well as support and understanding, to ultimately bring more harmony into our ostomy life journey. I found here, virtually no ostomy questions that are not touched upon. Questions which some might feel, may be too trivial to contact a doctor about or even too shy or embarrassed to ask their own doctor about. They are all addressed here.

For me, anonymity was very helpful in seeking answers to each phase of this life changing medical and mental event. Sharing initial trauma feelings, ongoing support and finally acceptance was what I found with my membership here. I am not sure what my mental and physical attitude would be today without having found this site.

Additional benefits included: finding products and ideas to help with daily maintenance, innovative ideas and as a bonus - some great humor.
After all “laughter IS the best medicine”.

I have been a member for 3 years, an ostomate for 4 years - yes, I certainly wish I would have found it immediately after surgery but so very thankful I finally found it when I did as I truly believe it turned my troubled depression and situation into a more positive attitude and acceptance.

Sincerely,
An Ileostomate nicknamed Justbreathe 🫶🏼

rachel_louise
May 22, 2013 5:50 pm

Thank you for replying! That's what it feels like, kind of pulling down pressure. It's horrible, isn't it! Not had a test done yet. Doc gave me antibiotics without a test, but if it continues, I'll go back and he will test me. Got an appointment next week. Hopefully, he will sort me out! Was yours a UTI or was it just from surgery? X

Past Member
May 22, 2013 6:06 pm

Mine were always just from surgery - no UTIs. At least from what I can remember. But I do recall worrying like crazy that everything had been damaged and whatnot. It did eventually go away!!

monty
May 23, 2013 12:03 am

I'm a dude and just went through a rectal removal about 3 weeks ago. Lost all bladder control
and now my big ass wears diapers. I have a buddy who went through it all and we should be okay in 2 months. Good luck and just hang in there awhile longer. When I sit, I sure have some pain, feels like a tennis ball trying to fit where it can't.

 

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gabefoo
Sep 06, 2013 10:31 pm

Rachel, do you have a Facebook or Instagram?

vanessavy
Sep 25, 2013 1:24 am

I have Interstitial Cystitis due to nerve damage from a stomach surgery I had back in 06. With my BCIR, it sometimes feels like my bowel irritates my bladder and makes it worse. Hard to explain. Anyway, IC (Interstitial Cystitis) can be misdiagnosed as a UTI. They feel the same. Might be something to talk to a Urologist about or Pain Management. I get nerve blocks, and it has helped.

bplad
Aug 30, 2018 1:24 pm

Hi Rachel, I've had Crohn's for 20 years and had a pan-proctocolectomy a few years back, best thing I ever did. Recovery wasn't easy but was worth it in the end. How's your recovery going now?

Chirag
Oct 10, 2018 11:53 am

Hi...Rachel...I am Chirag from India having permanent ileostomy...I am looking for a soulmate...I am purely vegetarian...Please connect to my Facebook account by typing Chirag Sanghvi...And yours?