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Bladder pain after j-pouch surgery

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Wed May 22, 2013 6:12 am
Hiya I had a emergancy colectomy last year due to UC, I decided to go for a jpouch and had my rectum removed & jpouch formed 3 weeks ago (ill have take down surgery in afew months) I'm recovering very well no problems at all apart from really awful pain in my bladder when I go to the toilet. I've been on anti biotics incase I had a water infection from the catheter but still no better! Did anyone else experience anything like this? I'm scared something may have been damaged in surgery :-/
Wed May 22, 2013 10:42 am
hey, I have the same issue after each surgery. It's almost like your bladder is trying to pull down or something and it's really painful. Have you had a UTI test done? If not, probably a good idea because if you don't have one, then taking antibiotics would do no good. For me, it took about 1 to 2 months for the pain to go away. I hope it goes away faster for you. In the meantime, there IS a medication called Pyridium that will make things a bit more comfortable for you. Beware though, it turns your pee bright orange. Kinda freaky Wink BUT, it always helps me feel better until things actually heal.

Wed May 22, 2013 12:50 pm
Thank you for replying! That's what it feels like kind of pulling down pressure it's horrible isn't it! Not had a test done yet doc gave me anti bs without a test but if it continues to go back and he will test me. Got an appointment next week hopefully he will sort me out! Was yours a UTI or was it just from surgery? X
Wed May 22, 2013 1:06 pm
Mine were always just from surgery - no UTIs. At least from what I can remember. But I do recall worrying like crazy that everything had been damaged and whatnot. It did eventually go away!!
Wed May 22, 2013 7:03 pm
I'm a dude and just went through a rectal removal about 3 weeks ago. Lost all bladder control
and now my big ass wears diapers. I have a buddy who went through it all and we should be ok in 2 months. Good luck and just hang in there awhile longer. When I sit I sure have some pain, feels like a tennis ball trying to fit where it cant.
Fri Sep 06, 2013 5:31 pm
Rachel, do have a facebook or instagram?
Tue Sep 24, 2013 8:24 pm
I have Interstitial Cystitis due to nerve damage from a stomach surgery I had back in 06. With my BCIR it sometimes feels like my bowl irritates my bladder and makes it worse. Hard to explain. Anyway. IC (Interstitial Cystitis) can be misdiagnosed as a UTI. They feel the same. Might be something to talk to a Urologist about or Pain Management. I get nerve blocks and it has helped.
Thu Aug 30, 2018 8:24 am
Hi Rachel , I’ve had crohns 20 years and had a pan-proctocolectomy a few years back, best thing I ever did. Recovery wasn’t easy but was worth it in the end. How’s your recovery going now ?
Wed Oct 10, 2018 6:53 am
Hi...Rachel...I am chirag from india having permanent ilestomy...I am looking for a soulmate...i am purely connect to my fb account by typing chirag sanghvi...and yours?
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