I'll start out by stating that I'll try to keep this message sensitive, but will be totally honest. Weight is hard for anyone to talk about, but with our diseases, it appears that there isn't a happy medium - we're either trying to gain or lose weight. I've had a J-Pouch that has been functional since 2010. I gained a lot of weight between surgeries (3) but was able to lose it all - and then some more (which was good, since I was a little bit overweight to begin with. Unfortunately, I have developed Pouchitis 6-7 times since then, forced to quit my full-time job, and put weight back on during these times, due to necessary dietary change. In 6 months, I gained 35 lbs - it may not sound like a lot, but I'm only 4'11". I was working out regularly and even had been seeing a licensed nutritionist for months. She couldn't figure it out either.
I'm wondering if anyone else has had these problems and what worked for you? I'm at my wits' end. I haven't been healthy enough to work full-time in about a year, feel awful about my appearance (and the weight that won't come off), and even worse - isolated. I live in a rural state where there aren't support groups in my area. My fiance and I have even postponed our wedding because of my health issues (chronic fatigue).
Any advice or testimonials would be greatly appreciated.
Sending out good vibes,
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J-Pouch weight struggles and fatigue - seeking advice
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