Life After Surgery: Overcoming Challenges and Finding Love

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Tony
Nov 12, 2009 6:32 pm

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Hi all, I had my ileostomy, bowel, and anus removal on Friday, 13th October 2006. It's a good job I'm not superstitious. As I started to improve after the operation, I found that I had erectile dysfunction, so I went back to see the surgeon who told me that sometimes the nerve gets damaged but it could take up to 3 years to rectify itself. I've been widowed for 5 years, so it didn't really matter at the time. Now, three years later, I have met a lady who is also an ostomate, and we can talk openly about anything, so I decided to get some advice from my gastroenterologist consultant, who I see every 6 weeks as I also have a blood disease called Vasculitis. However, he first asked if I had any signs of erection first thing in the morning before urinating (in our younger days, we used to call it a piss proud); yes, I do, but it doesn't last long when I finish. He told me that the nerve healing process seemed to be okay and the problem could now be in my mind and suggested that I see my own doctor for some Viagra. This is where the fun starts. After explaining everything to him, he said I didn't qualify under the NHS as there are certain criteria you have to meet, but I could pay for them, so I said "Just a minute, Doc, I've never paid for sex in my life, and I don't intend to start now, so what's the criteria?" He said he would have to look it up in his guidebook, so I folded my arms, sat back in the chair, and said, "I'll sit here until you look it up." He threw me a dirty look, picked up the book, and found a section on pelvic operations, which he said would do, gave me a free prescription as I'm over 60, and off I went feeling like a recycled teenager, so it pays to stand your ground for what you want!! Will keep you informed if ever I get the chance to use them, as the scouts say, "Be Prepared." All the best, Tony
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gutenberg
Nov 12, 2009 7:23 pm


Good post, Tony, keep your, er, chin up.
lottagelady
Nov 12, 2009 7:41 pm
Good for you Tony, and how lovely you have found someone. Look forward to hearing your update!
Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.