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Living in the moment and enjoying the pleasure of pain free

Posted by Redondo, on Mon Jun 15, 2015 5:43 pm

I have been seeing a lot of comments these days about living in the moment and I think that I finally get it!

There have been times when I am in pain. But, OH how great I feel when the pain is gone and I realize that I am not in pain anymorecool.

It's easy to know when I am in pain or discomfort from my ostomy. But when the pain and discomfort is gone, I don't always notice that. So, I have started to ask myself how I feel on a regular basis and when I realize that I feel free of pain, I am so happy and treasure that moment of realization. It's like "hey I am free of pain, Yippee"tongue-out

I was wondering if any of you out there ever have that time of realization and if you feel greatful for it?

Reply by Immarsh, on Mon Jun 15, 2015 8:00 pm

Hi, 

I'm Marsha, and  I've posted about this a few times.  I have my ostomy for more than 50 years, so that's rarely an issue for me.  But as I've gotten older, ( I'm 66)  I've developed so many conditions that cause pain, that I was finding it difficult to deal with ( kidney disease, arthritis, disc disease/ back, sciatica,  diabetic neuropathy to name a few).  I also can't take aspirn ( stomach issues) not supposed to take Tylenol, which can be toxic to the kidney, and Ibuprophin, is a "no no" for another reason I can't remember.    So what's the alternative....live with the pain.  For awhile, it was really getting me down,  until I decided to rate my pain from 0 ( no pain) to 10 ( extreme pain)   I realized that all pain can't be a 10....   And so when I wake up each morning, I take an assessment....if I get up, wiggle my toes, get to my feet, do a few stretches.....and there's no *rateable pain, it's a pain free day. I'm happy!    In the past one day of pain....or even a few hours, could ruin the day or even a week for me.   Arthritic feet & ankles....yes.  Pain yes.  Is it going to keep me from going into NYC for a Show?  No way.  I ignore fashion, put on my sneakers and walking shoes, and go out for a good time.  I may need to keep my feet up the next day....but that's ok.   I'm glad you discovered how to "Live in the Moment".  Don't let the few bad days, ruin the good days. 

Best Regards, Marsha

Reply by Redondo, on Mon Jun 15, 2015 10:57 pm

Hi Marsha

I read your bio and it seems we have many similarities. I am 62 year old woman and I had my iliostomy from chrons when I was 20, so over 40 years ago. I was married when I was 18 and stayed married with that husband for 18 years. I subsequently remarried and that didn't work out either. Now I have been in a committed relationship for the last 13 years. I don't have any children but I have never let my ostomy get in the way of anything that I every wanted to do in life. I have worked in executive management for many years and travelled to Australia, Alaska, Europe and Canada. I love to dance, golf, bowl and play bridge.

I don't usually have any pain from my ostomy but once in a while it feels like I am having some cramping that normally goes away quickly enough. I sometimes have lower back pain leading to sciatica but thankfully, I haven't had this for the last couple of weeks. It was only yesterday that I realized that I have been pain free for the last couple of weeks and that's what inspired me to write my last blurb.

It is typical for all of us to ask why we go through our trials and tribulations. Sometimes we come out stronger and more greatful. I pray I will always do that.

Thanks for your words and may you too always stay as positive as you are now.

Many Blessings, Redondo

Reply by Ewesful, on Tue Jun 16, 2015 6:50 pm

I have had a wonderful trip to the UK -- would love to share places to see --- I had a difficult time keeping the bag attached to the skin -- like it was replacing ever 2-3 hours and I did not have that problem before the trip or  once I was there..mystery that I could have done without!!

 I found it all very exhausting, but well worth the time and energy.  I am planning on another trip over there this coming year to see the grand children! If you have "must see list" other than London and Nottingham area, I'd love to know some special places or things to include.  

 

 

Reply by Redondo, on Tue Jun 16, 2015 10:23 pm

Hi Ewesful

There is a little island near UK called Malta. I was born there. Many think that it is a very pretty little island. Europeans find it to be inexpensive compared to other European places. Google it and if you are interested in going there, let me know and I can recommend places to stay.

Happy Travels

 

Reply by Immarsh, on Wed Jun 17, 2015 12:03 am

Hi,  Redondo & Ewesful,  

Glad the difficulties with your pouch hasn't ruined your desire to travel Ewesful.   I have to do 19+ hours, of just flying time from New York  in the states, to to see my grandkids in Australia.   But this year, they're coming here ...in December.  Their parents want to show them "snow"!  Brrrrr 

 Redondo, Are you sure you mean Malta?    I'vwe been there,  and it's actually off the "boot" of Italy, and I think a little west of Sicely.  I went  for a long weekend ( yes folks, I travel that far for a 3 -4 day trip)  and we took a hydrfoil to Sicely for the day".   

I had a fabulous trip/ tour, when I went to England...  Started in London for 2 days, before embarking on our "travels North.....stopping at points along the way. I'd love to go back to the "Lake District/ William Wordsworths home .  We spent one day in Wales  ( not enough time) and then 3 days in Scotland ( not enough time) and then drove down the East side of England on the way back to London.   ( Went to Cambridge & to Oxford)   We slso  spent some really nice time in York and loved the narrow winding streets, and the little shops and restaurants. But for the most part, it was a "look / see & get back on the bus" kind of trip.  So I'd really love to go back, and stay put for a while.  I'd like to go to Cornwall.....and spend some time at the resort/ beach towns.    So much to see and do.....just need the time and the money, and of course good health.  To have all three together, is truly a blessing.  We can meet in the chatroom on night....to talk about travel.  Anyone else interested, jump right in. 

Reply by Redondo, on Wed Jun 24, 2015 12:15 pm

Hi

Sorry that I haven't written in a while. My mother has been visiting me from Canada for the last couple of weeks and she will be here for another 2. So, it is difficult for me right now to keep up with my emails and such.

I would like to chat sometime but I haven't figured out how to do that on this site yet.

And... yes, I definately know that I along with the rest of my family were born in Malta. I know Malta is a little further from the UK but many from there like to vacation in Malta. You are correct about it's location. It is 60 mi S of Sicily and 90 mi N of tip of Africa.

It is ironic that you actually visited Malta. I hope you enjoyed itcool.

I enjoyed Austalia as well. For some reason, maybe because of the UK affiliation, many Maltese imigrate to Australia. In Melbourne there is a "little Malta" and I have relatives there. I also have relatives living in the UK and I myself was raised in Toronto Canada. Until 1969, Malta was under British rule and then became independent. So, it was easier for Maltese to immigrate to UK affiliated countries. I joke that there are probably more Maltese living off of Malta than there is on the island.

Anyway, I hope to catch you back again soon.

Live your bliss and many blessingsinnocent

 

Reply by moonshine, on Thu Jun 25, 2015 8:50 pm

I am greatful when for a moment I forget I have a bag

Reply by Redondo, on Fri Jun 26, 2015 12:51 am

Hey Moonshine

Hopefully you get many more moments to be greatful for. Over the last 40 years, I barely even realize that I have a bag. It's just become such a part of me that I don't even think that way or even remember thinking that way.

Take care

Reply by Immarsh, on Fri Jun 26, 2015 1:22 am

Hi Redondo,

I absolutely LOVED Malta, and I was only there for a "long weekend".  It was a $$$  bargain ...and one of the first international trips I took.   I was surprised, because I thought it was going to be more like Italy.  Instead, I found it more "mid Eastern", and so interesting.  I loved the geography, the people, the food...   I went with a friend, and a group of his friends, but three of us paired off, and had a great time on our own.  We unknowingly grossly overpaid our taxi driver....to take us on an evening tour, and at the time didn't understand why he was waiting for us in the morning, ready to take us out again.   I'm sorry I didn't write a journal of all the things we swas and did in four days.  One of the most moving was a group of "holy" people and residents walking through the streets at night.  The views of the waterfront areas were fabulous, and we also took a trip to an "old walled city" and did a tour in a horse drawn carriage.   The trip was a long time ago....but was magical.   And because we were so close to sicily, we took a day trip by hydrophoil.....left at 5 am, and didn't get back & through customs until 1 am.   But we 'danced" in the craeters at Mt. Etna, before it exploaded again.....and I could go on and on...   I guess you can tell, I love to travel.   So much to see and do...and so little time & money...But I'm grateful I've done as much as I have.  

 

Marsha

 

Reply by Redondo, on Fri Jun 26, 2015 1:39 am

Hi Marsha

I am so happy that you enjoyed Malta. I know the walled city that you mention. It is called Medina. It was originally Malta's name. There is unbelievalbe so much history for an island that is only 17 mi long. You gave me goose bumps speaking about some of these areas. I too love to see different places and would love to go back to Malta again soon, except I hate the travelling part.

Between you and me though, I think that I was fortunate that I wasn't living in Malta when I had my Chrones problem and needed my ostomy. I don't know if they would have been able to look after me as well.

Where do you live now?

Reply by jpeters, on Fri Jul 03, 2015 12:03 pm

My entire life revolves around pain/disability from the ostomy. I have no problem in life that wouldn't be instantly solved by not having an ostomy. I had more fun in a weekend when I was healthy than I do in a year now, and probably suffer more in a week than I did in a year of living normally.

It helps to reorganize your life around the stoma and isolate yourself from other people, but there's only so much you can do.

From your post it looks like we got opposite results. It raises the old question, how many people end up like you, and how many end up like me? There are so few QoL studies, and most rely on self reporting from a small group of older patients, who were usually dying of cancer. This in no way provides an accurate picture for younger, healthier people considering an elective stoma.

So you end up playing Russian roulette with no idea how many chambers are loaded. And if you lose you'll spend the rest of your non-life bitterly regretting it.

Reply by LadyHope, on Fri Jul 03, 2015 2:45 pm

Hi Jpeters,  I just read your post and wanted to say Hi.  We have not chatted in a while.  To comment from a previous post of yours, I often look at ostomy appliance advertisements and wonder do the models have ostomies.....?  It should be a prerequisite to making the ad...don't you agree.  Yes, I can relate about the fun aspect.  I went to a baseball game the other day in the city and, of course, had to use the bathroom.  What a PITA....I should use another expression...LOL  I was having issues trying to empty, standing up, in a dirty stadium, well used bathroom.  I managed but it was not like the old days.  I sometimes feel that my life revolves aroung my stoma.  I agree with you about the medical studies.  It appears that the medical profession is pleased with the ostomy as it saved a life...these posts seem more accurate about what life is really like living day to day with an ostomy.  Will you still be going to the conference in Sept?  Take care.  LH

Reply by jpeters, on Fri Jul 03, 2015 4:11 pm

Hi LadyHope. Its nice to hear from you. Hope you're doing well, and enjoying your 4th of July weekend. I agree, supply companies should use real ostomates in their ads. They make reasonably good products, but they also have a major financial incentive to convince people to get ostomies. They bombard ill people with ads showing how great life will be when you're wearing their bags. For some people its true, and for some it isn't. You're absolutely right about the doctors. Do you think they'd feel differently about the stoma if they had to get one? Maybe if surgeons had stomas, we'd see more progress in this field. I am still planning to attend the conference, and looking forward to meeting you & your husband there. Best, JP

Reply by LadyHope, on Fri Jul 03, 2015 8:54 pm

Very interesting that you bring up the point about the doctors, nurses and ostomies.  When I was very ill, I asked every single medical professional that I came in contact with if they had an ostomy.  None of the people who were directing me had an ostomy.  Guess what....finally I met someone at the UOAA conference who was both an ostomate and a practicing wound care nurse.  As the saying goes...she talked the talk and walked the walk.  I was very happy to meet her.  She shared her story with me and assured me that once I got used to the "new normal" I would be okay.  The new normal is not as new but I try to take it one day at a time.  I keep telling myself, maybe one day a medical genius will develop something to help ostomates...maybe grow a new colon in a lab, repair a damaged rectum, cure GI disease, cure cancer, repair damaged intestines, etc.  I keep looking forward with hopeful anticipation.  Maybe one day soon.....LH

Reply by jpeters, on Sun Jul 05, 2015 2:11 pm

Hi LadyHope, Thanks for sharing that. A WOCN with a stoma must be a real expert. She would be great at helping people choose stoma placement. Mine's in a lousy place, and you mentioned that lady who had one right in her belly button. A lot of people really struggle based on placement, b/c the professionals don't know what its like to really live with one. I agree, we'll just have to keep hoping for lab-grown colons, gene therapy, and the other things on the horizon. Just gotta get thru today, and maybe tomorrow will be better. JP

Reply by LadyHope, on Sun Jul 05, 2015 10:24 pm

Yes, I agree with you JP...one day at a time.  When I look too far ahead, I get overwhelmed with thinking.  Years ago my future looked differently...all in the perception.  I was fortunate to be able to meet with an ostomy nurse to determine placement of my stoma.  The surgeon said he would do his best to place it at my marked spot.  He pretty much did.  Location, location, location....for both ostomies and real estate...LOL  I have read that some stomas need to be replaced for a variety of reasons.  I don't who to ask, but is new placement surgery the same as the original surgery? 

How are you feeling JP?  Any relief from the ongoing cramping and pain?  I hope so.  I wanted to pass along a new juice drink that I found in the supermarket.  It is called coconut juice, not water, and it is delicious....very rich.  The juice is pressed coconut, so it has very small bits and  pieces and it is organic.  Apparently coconut has some health benefits, but I can't eat it today due to my ostomy, so this drink is my replacement.  It is also non dairy.  Take care and have a nice week everyone.  LH

Reply by jpeters, on Fri Jul 10, 2015 9:05 pm

Hi LH, sorry about the delay in responding, but the site didn't notify me about your post. The coconut juice sounds like a good alternative to milk, especially for dairy-intolerant ostomates. People might also enjoy almond milk or rice milk, which are both low-fiber and non-dairy. All good options for vegetarians or people with motility issues. 

My stoma is the same as ever. A liquid diet & two daily irrigations keep the discomfort manageable. Its been like this for two years, and Mayo Clinic says there are no surgical options, so this is probably it from now on. I'm not feeling great, so I'll probably sleep thru the evening, maybe fast for a couple of days.

Take care, and hope you have a good weekend.

 

Reply by Rosiesmom, on Sat Jul 11, 2015 4:31 pm
Immarsh wrote:

Hi Redondo,

I absolutely LOVED Malta, and I was only there for a "long weekend".  It was a $$$  bargain ...and one of the first international trips I took.   I was surprised, because I thought it was going to be more like Italy.  Instead, I found it more "mid Eastern", and so interesting.  I loved the geography, the people, the food...   I went with a friend, and a group of his friends, but three of us paired off, and had a great time on our own.  We unknowingly grossly overpaid our taxi driver....to take us on an evening tour, and at the time didn't understand why he was waiting for us in the morning, ready to take us out again.   I'm sorry I didn't write a journal of all the things we swas and did in four days.  One of the most moving was a group of "holy" people and residents walking through the streets at night.  The views of the waterfront areas were fabulous, and we also took a trip to an "old walled city" and did a tour in a horse drawn carriage.   The trip was a long time ago....but was magical.   And because we were so close to sicily, we took a day trip by hydrophoil.....left at 5 am, and didn't get back & through customs until 1 am.   But we 'danced" in the craeters at Mt. Etna, before it exploaded again.....and I could go on and on...   I guess you can tell, I love to travel.   So much to see and do...and so little time & money...But I'm grateful I've done as much as I have.  

 

Marsha

 Hi Marsha Rosiesmom here I got your message woul love to talk more with you also but I am such a novice with this tech, stuff. I did reply but the said I couldn't sent it I am going to see someone this weekend that can perhaps help me. Didn't want you to think I was ignoring you. Sincerely Rosiesmom



Reply by Immarsh, on Sun Jul 12, 2015 3:15 am

Hi JP,

  It's Marsha again....and I think I'm destined to make you "my project". 

  You're so young, and you have your whole life ahead of you.  Sure, it's different with an ostomy, but for me, I'd sooner have this than all the pain, 20=30 bloody bathroom trips a day, missing out on school, and social life, because I couldn't be away from the bathroom for long.   Since surgery.....I've lived as "normal" a life as anyone could.  I went to camp, changed my appliance in a stall, without running water, in the dark, with bees buzzing around.  I've skiid ( wasn't good at it),  went ice skating, flopped on my belly countless times ( not good at that) swam in the ocean,pools, and even the dead sea...which was a fiasco.  My apliance popped off, and I was a filthy mess.  But I got through it all.   AT 15 , I had a determined optomistic attitude, but you should have seen the awful supplies at the time.  The wafers were made of rubber or plastic and were re usable.  The pouches were rubber, and were also re usable.  They did "smell", so I needed to use all kinds of deodorants.  I was lucky enough to know many other teens and young adults through the NY Ostomy association.  That was a big help in my developing confidence and a positive attitude.  Even at my "ripe old age".... I travel, meet people, snorkel ( on the great barrier reef) and won't give up on living a full and interesting life for something that just different plumbing.   If you haven't "had sex" for 10 years, then you're not putting yourself out there, meeting people and being the best you possible.   Start with that,and see if it makes a difference.  You have a "disability" ( and I even hate to call it that) that can't be seen, and nobody has to know about it, until you want to tell.   So go out, be social, meet people, give women a chance.....With or without a stoma, one needs to kiss a lot of frogs, ( or frogetts) before finding tha t  prince or princess.   Many people are here on this site to support you in your efforts....but you are the one who needs to step out of your comfort zone, to find what you really want.  We all wish that "this hadn't happened to us", and while it may make connecting with others more of a challenge....it's doable.      I really do want to hear back from  you, and find out you've done something positive...   Buy some new clothes, go to a singles event....Make connections on dating websites.  Do things  you're interested in doing.....and look around for women who are single.   I love hanging out in bookstores and libraries....   Pick your interests!  I'm thinking of starting to hang out at the local marinas, because I'd love to meet someone who loves the water ( sailing) as much as I do.  

Best of luck to you.  

 

Marsha

Reply by jpeters, on Sun Jul 12, 2015 11:08 am

Hi Marsha, Thanks for sharing your experience. Must've been rought with the low-quality rubber bags in the 60's. And then you think about the people back in the 20's hand-washing their leather bags, which were anchored to their belt with an iron ring. Ye old ostomy.

Snorkeling over the Great Barrier Reef sounds like a blast. Make you could tell us about it sometime, like you did in that fantastic Malta post. Not to blow smoke, but you're a natural travel writer.

I really do smell like crap 100% of the time. Its unmistakable. Family + friends abandoned me 7 years ago, and every time I go out in public I encounter a wave of hostility. I actually ran into an old friend who sort of glared and said, 'you smell.' And I only go out in public after eating nothing, irrigating 2 hours, showering, and new wafer/bag. Have spent $$$ on WOCNs + GI docs, no answers. So its completely impossible to date, let alone go to the hardware store without people glaring and touching their noses.

Reply by LadyHope, on Mon Jul 13, 2015 12:11 am

Hi Jpeters,  How are things going?  I just read the two previous posts, Marsha's and yours.  I remember reading that you can't tolerate solid foods because of the awful abdominal pain.  I was curious, are you able to tolerate yogurt, yogurt smoothies or frozen drinks?  I eat yogurt when my stomach is upset.  It seems to help.  Also, yogurt, cranberry juice, tomato juice and apple juice are supposed to help with odor.  Parsley is another good odor controller but it would need to be eaten in large quantities.  I was thinking maybe pureed with some salt or blended with another juice.   Regarding the appliances of year gone by, I viewed photos of them on line.  Wow... we have come a long way from the early days.  I also read about one person who had surgery in the 30s or 40s and was sent home with nothing...no appliances.  Ostomy care consisted of what a person had at home such as towels and wraps in order to keep things in place.  One person created a metal cup to catch the effulent.  Those post op patients must have been so frustrated with the system as their quality of life was challenged every single day.  They were so brave and creative. 

Are you still going to attend the UOAA conference in Sept?  It should be a good place to find the answers that you have been seeking over the last couple years.  With all of those ostomy experts in one spot, my hope it that someone is familiar and can help you with the terrible stomach pain and odor.  Also, how is work going?  A few weeks ago, you and your team were celebrating a potential new client and product design.  Good luck!   LH

Reply by jpeters, on Tue Jul 14, 2015 10:59 pm

Wow, home from surgery with no appliance. That must've been incredibly challenging. You have to relearn to do absolutely everything, with no help from anyone.

Thanks for the nutritional suggestions. I can't digest yogurt, but do live on a diet of homemade juice, including cranberry, apple & parsley. It drastically reduces stool odor, so I walk around smelling like low-odor stool. Its the difference between people sniffing & glaring, and people coughing & looking like they want to murder me. There's a phenomenon described in psychology texts where some people get violently angry when someone smells. We may have evolved that way to drive out sick members of the group before they can spread disease.

I'm planning to attend the Conference, barring a change in our work schedule. Thank you for asking about our project. Its going very well, and we're on track to ship the first units in 6 weeks. How's work going for you? Is your ostomy cooperating?

Reply by LadyHope, on Wed Jul 15, 2015 4:15 pm

Yes, so far Stanley is cooperating as much as a stoma can....LOL.  Work has been busy for me in addition.  Thanks for asking.  I am excited about my book too.  It launched last week and is now available on the Tate publishing site as well as Amazon and Barnes and Noble.  I am very excited and hope that this short read helps those traveling a smiliar path.  The book is geared toward the newbie and/or someone facing surgery although all us can relate to the experience.  Looking back three years ago, pre surgery, I felt so alone and loathed that feeling.   I would google information about surgery, living with a stoma, famous people with stomas, how to dress, what to eat....you get the picture.  I wish that I had this book as my resource.  Anyway, I will see how is goes. 

I am sorry that you can't eat yogurt.  It is not my fave but I do eat it especially when I am taking antibiotics.  Your work project sounds like it is on track.  Wow... shipping in 6 weeks is terrific!  Congratulations. 

I am looking forward to the conference and seeing everyone.  I heard that over 400 people are attending so far and the number is growing.  It was fun and educational two years ago when my husband and I attended.  It should be a good time once again.  I am also looking forward to possibly touring around the city.  I hope the weather cooperates.  I have been there once, but it was a work related trip - not much free time.  Take care.  Have a nice week.  LH 

Reply by jpeters, on Fri Jul 17, 2015 3:01 pm

Congratulations on becoming a published author! That's a nice accomplishment, and should help people facing an uncertain surgery. It should also be helpful to the people who are less ill and wondering whether to get the surgery in the first place. What's your book called? I'd like to check it out.

Yogurt is a no-go because its a stool thickener, like rice & applesauce. They're great for an ileo with the runs, but really bad for a colo with poor motility.

It'll be interesting to see who attends the conference, what the age range is, is anyone coming from a foreign country, etc. Are you driving out from PA or flying?

Reply by LadyHope, on Fri Jul 17, 2015 4:09 pm

Hi Jpeters,  Thank you so much for the email.  Yes, I am very excited about my little book.  My hope is that I am able to help others walking a similar path.  My book is called Stanley and Me make three.  You can view it on Amazon, Barnes and Noble and the Tate Publishing website.  It is a short read...basically my journey to gaining an ostomy.  The read is about 30 minutes at most.  My thought was... make the story a short, inspiring easy read.  I also included some ostomy contact information including the UOAA, The Phoenix magazine and meet an ostomate website. 

Yes, my husband and I are driving to St. Louis.  This should be an interesting 13 hour plus drive.  We decided to drive b/c I have a booth at the conference and did not want to check my books at the airport.  The "what ifs" kicked in and I envisioned my box of books sitting somewhere in an airport terminal (not St. Louis) lost.  So we are driving...road trip...LOL.

I can't remember if anyone from overseas attended last time but I know several people were from Canada.  It was a great group of people.  There is also an Ostomy conference in Canada.  Two years ago I believe it was held in Nova Scotia.  I would have liked to have attended but the airfare was very expensive.  No direct flights from where I live. 

Thanks again Jpeters.  Hope you have a nice weekend.  Take care.  LH

Reply by jpeters, on Sun Jul 19, 2015 12:04 pm

Stanley & Me has a fantastic cover. Really eye-catching. It'd make a good wall poster. Will be interesting to read your book, from the perspective of someone two years out of surgery.

As it happens I've always wanted to see Nova Scotia. But its a 50 hour drive from Phoenix, which would take 4 days on a sane driving schedule. So that would be a 12 day fast, which gets a little rough. Still, the scenery would almost be worth it. That place is stunningly beautiful. St Louis should also be interesting, and has a lot of history. You & your husband might enjoy a carriage ride on the river, in the downtown area. Its supposed to be really scenic both day & night.

Reply by LadyHope, on Sun Jul 19, 2015 1:42 pm

Thank you Jpeters.  I really like the cover design too.  I am now thinking of the next book... my ideas usually come to me at night while I am trying to sleep.  Yes, two years post op.  I can't believe two years post op and then I think, two years have past. 

Yes, we are looking forward to the conference and touring the area.  I read about St. Louis on trip advisor as I have found in the past the information posted is fairly reliable.  You are driving to the conference too?  How long is the trip from Arizona if you drive?  Also, is your area getting all of that rain?  I saw something on the local news about flooding in AZ.  What strange weather we have been having this summer.  Our area has been experiencing rain and overcast weather...not typical for the Northeast in June and July. 

Take care Jpeters.  Have a great day.  LH

 

Reply by jpeters, on Tue Jul 21, 2015 12:12 pm

Its a 24 hour drive to St Louis, so it'll probably be a two-day trip. Luckily none of the cities on the way are high-traffic. Driving once from Albuquerque to Cheyenne the traffic added four hours to the trip. 

We're getting tons of rain here too. We usually have big monsoon storms in July-August, so this is pretty typical for us. It causes flash flooding, but here they build the houses uphill from big drainage ditches, so its not usually a problem. Wonder how the weather will be in St Louis.

Hope you're doing well. JP

Reply by jpeters, on Fri Aug 07, 2015 6:54 pm

Looks like I won't be attening the UOAA Conference. We've got far too many projects right now, which is certainly good for a small company. It likely wouldn't be relevant to me anyway. Topic like intimacy and cross-country biking. I haven't had sex in 10 years and can't even jog without doubling over in pain. Plus the extreme stress of smelling like crap in public, standing in the corner and trying not to bother anyone. But it should be good for people with more functional stomas.

Also, I liked your book LadyHope. Its very conversational and friendly, and succinctly addresses the fears of people heading into surgery. It'd make a good addition to the UOAA materials that go in hospital rooms. It's also good as an Xmas present to someone facing surgery after the holidays, who would have the same anxiety you did in 2012. Oh, and there's a small typo on P. 18. It says "perfuse diarrhea", instead of "profuse."

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