I had a huge amount of fluid that went somewhere other than where it was supposed to (the body cavity) and it had to be suctioned out. It happened after the surgery and I had no repurcussions, but I was stunned at the gallon plus they removed....I had no pain and no problem as the stitches had not closed and they could open a couple and get the tube in -- fascinating process to be honest!
However, I am not sure otherwise why the bulge unless as you refer to the other surgeries not holding any muscle tone --- I definitely did not look large or have any such issues after the stitches healed. I wish you well. I do not know if fluid masses show on the tests...
I had an illeostomy in august 2014. I had swelling ever since.....goes flat at night then as soon as I've eaten or drunk anything it starts to swell, by the end of the day its really uncomfortable.
To be honest my local hospital (Pembury) has all but given up on me .....they have tried anti biotics for a parasite that they think I may have picked up...that worked for a few days then back to the swelling....on my insistence they then put me on another course (longer) of anti biotics which seemed to help after a week for a while ......then back to the swelling, they thought at one point that I had SIBO (look it up on google) I had a breath test for this which came back as negative but this test is only 80% accurate, I guarantee that I'm in the 20%.... the second dose of anti biotics only work on 27% of people, you bet I'm in the other73%.....
I'm off to Guys in London in two days time to have a camera shoved down my throat, through the stomach and into the small intestines, maybe they'll see something??? in a couple of weeks I'm back for a MRI scan, hopefully after this they may have an answer for me, I'll let you know. I've also been told that adhesions can cause bloating ...
I know this isn't of much use to you, but there are a couple of things you can suggest to the surgeons.
NOT MANY KNOW ANYTHING ABOUT SIBO!!!!
All the best
I have the camera deal every year and it is in a capsule and no issue --
In the future have them use the body wrap - no adhesions -- I do wonder what the issue is and will be watching to see what you folks find out --- obviously something is pushing on organs and I would bet you will find there is a pocket of fluid --- I wish you folks well and the best of luck.
Hello pete b. Thanks for the post on SIBO I looked it up on Google and found the article fascinating. You appear to fit the symptoms and the attempts at resolving the issues perfectly so let's hope the folks at Guys' can come up with something for you that works. Please let us know the outcome. Best wishes Bill