Have had ileostomy for 3 years -called Winnie (the poo) but have also had MS since I was 15 -I'm 61 now. Is there anybody else out there with the same combination? Please write. Would love to hear from you. Belinda
Belinda
Nov 08, 2007 11:14 am
Past Member
Nov 10, 2010 1:27 pm
Hi Belinda, well, there's me with M.S., and when I had my op there was talk amongst the nurses of a vicar's wife with both diseases, so we are about!!
I manage quite well, but what worries me is if I get another attack my hands would have no feeling for the intricate dealing of a bag change, or worse still, a bag leak, dread the thoughts! I have had M.S. since I was 23years, but symptoms not recognised by me, were present from the age of 20. I have been totally paralysed twice, both times taken about a year to get back to "normal", several minor attacks taking 4months to get back again, and been in hospital 3 months at a time, twice.. I would be interested to hear how you manage.
I manage quite well, but what worries me is if I get another attack my hands would have no feeling for the intricate dealing of a bag change, or worse still, a bag leak, dread the thoughts! I have had M.S. since I was 23years, but symptoms not recognised by me, were present from the age of 20. I have been totally paralysed twice, both times taken about a year to get back to "normal", several minor attacks taking 4months to get back again, and been in hospital 3 months at a time, twice.. I would be interested to hear how you manage.
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Posted by: iMacG5
Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike