Have had ileostomy for 3 years -called Winnie (the poo) but have also had MS since I was 15 -I'm 61 now. Is there anybody else out there with the same combination? Please write. Would love to hear from you. Belinda
Belinda
Nov 08, 2007 11:14 am
Past Member
Nov 10, 2010 1:27 pm
Hi Belinda, well, there's me with M.S., and when I had my op there was talk amongst the nurses of a vicar's wife with both diseases, so we are about!!
I manage quite well, but what worries me is if I get another attack my hands would have no feeling for the intricate dealing of a bag change, or worse still, a bag leak, dread the thoughts! I have had M.S. since I was 23years, but symptoms not recognised by me, were present from the age of 20. I have been totally paralysed twice, both times taken about a year to get back to "normal", several minor attacks taking 4months to get back again, and been in hospital 3 months at a time, twice.. I would be interested to hear how you manage.
I manage quite well, but what worries me is if I get another attack my hands would have no feeling for the intricate dealing of a bag change, or worse still, a bag leak, dread the thoughts! I have had M.S. since I was 23years, but symptoms not recognised by me, were present from the age of 20. I have been totally paralysed twice, both times taken about a year to get back to "normal", several minor attacks taking 4months to get back again, and been in hospital 3 months at a time, twice.. I would be interested to hear how you manage.
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