I get this white milky discharge that comes straight from the stoma it self. Its like a pin point area on the stoma, in several areas, my stoma protreudes about one half inch out. amd the milky substance gathers around the base of the stoms and ends up pretty thick bt the end of the week or when i need to change. no odor, no itching, has anyone else have this?
hatlady
Dec 04, 2016 11:03 pm
Bill
Dec 05, 2016 6:55 am
Hello hatlady.
This sounds like it is 'mucus' that the lining of the gut produces naturally to help the smooth flow of faeces.
I get it in abundance both from the stoma and from the anal stump that was left behind after the operation.
It's interesting how it tends to coagulate after it's been in the open a while. I think it forms a protective barrier that stops other things from irritating the stoma and surrounding area. but that's just an opinion.
I believe you have absolutely nothing to be concerned about. However, with all these things, if you are worries about it thenseek advice from an ostomy nurse who will be able to professionally reassure you.
Best wishes
Bill
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Posted by: Karen & Stella
Fay,
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
Newstom
Dec 07, 2016 4:32 am
I read Bills post with regard to mucus out and around the stoma. Then he said there's mucus from the anal stump left behind. I had a colostomy that's supposed to be reversed some day. My anus is dormant but I do get mucus discharge from there occasionally Is that normal? Do you have the same situation and just refer to it as anal stump? It is inconvenient because I have to wear a long thin pad so as not to leak in my underwear from the back if their is a little too much mucus.
anyone have feed back on that? Hope you all are healing! Seasons Greetings!
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Bill
Dec 07, 2016 6:28 am
Hello Newstom.
The mucus discharge is quite normal. If it was not being produced, then the tube would get dry and sore.
Mine ranges from nothing some days to an enormous amount other days.
I wear incontinence pads bt have found that the mucus does not absorb very quickly into them. In order to rectify this, I fold up a bit of tissueand put that along the opening first. This absorbs the mucus quickly and then it is more slowly absorbed by the pads.
THis topic was discussed several times in the past and can be found in the CONTENT --'collections' on the right of the page. Look under 'stoma problems'.
I hope this helps
Best wishes
Bill