|Rider1000rr wrote: |
Bain. Have you ever had a leak? I heard that it burns the skin. On average how many times do you empty your appliance daily? How did you become so confident with the situation? I am normally a very confident person. I have been thinking about not having the surgery and enjoying what little life I have left. Without surgery I may live 2 to 3 more years.
I've had a few leaks, mostly in the first year. The first time, I was working retail. With a drainable pouch, there is a clip that keeps the drainable part closed. The new pouches even have velcro enclosures. Anyways, I had a clip keeping it closed and the clip failed. It was a small mess but I went home, showered, and put on not one but 2 new clips. Each box of the pouches I buy comes with a clip.
The second time I had a leak, I had drank too much beer and didn't empty the pouch before I went to sleep. Needless to say, the gas from the beer made the pouch swell to the size of a football and I hadn't changed it in a few days. Because the seal was weak from not changing it, the waste found it's way out to one side of the wafer and ended up as a big pile of shxt on my bed.
The last time I had a very slight leak was from a problem when the pouch was manufactured. The weld between the pouch and wafer was weak and allowed some waste to seep though. Not a bad mess but enough to make me change it. I contacted the manufacturer and they sent me several free supplies.
Since the waste doesn't travel through the large intestine anymore, it's more acidic. It's kind of like battery acid. If you leave it on the skin too long, yes, it can cause a burn. But if you clean it off your skin soon after exposure, there is no burning. Sometimes the skin around the stoma can get irritated but that's only if you cut the hole for the stoma to go through is too big. I also use skin prep wipes to shield the skin so burns like that don't happen if exposed to waste.
I drain my pouch anywhere from 3-6 times a day, usually when its about 1/3 to 1/2 full and I change my pouch every 3-4 days. I shower with the bag on and dry it with a hair dryer. It cracks me up when my land lady wonders why a bald guy is using a hairdryer....lol
I was always confident even before the surgery. Borderline cocky. But I was constantly in pain. After the surgery, I didn't have to run to the bathroom every hour on the hour, I wasn't in pain and I didn't have to take 5 different types of medication 3 times a day. It was incredible!! I could go out and not worry about shxtting my pants in public. I was once again in control of my body. The surgery gave me a new lease on life and I also aquired an IDGAF attitude. In my previous posts, I described my how my dating life went. Basically, if I got to know a woman well enough and it was going in an intimate direction, I would casually explain how I got the ostomy jokingly of course. I would say I have Crohn's Disease, had to have this surgery when I was 23 and I don't shxt like everyone else. I've NEVER had a woman turn me down for sex because of my ostomy. By the time we got around to having sex, the woman was so turned on, it didn't matter if I had a bag or horns coming out of my head.
I'm concerned that you say you only have 2-3 years left. What condition do you have that only gives you that short amount of time? If you're like most of us that have gone through the surgery, you will be thankful in the end and have a better quality of life. Hang in there man!! We're here for you!!