Looking for someone with a similar experience with colitis and ileostomy

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Past Member

Hello Mr. Hamster, my story is much the same, extremely fit at 200, 135 after surgery, happened fast, surgery or death. I tell people to take nothing for granted, because it can all change in a second. In ICU being pumped full of antibiotics, fluids, and hemoglobin.

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Kiwi Al

Hi, I can relate. I had UC for more than 10 years. I tried every drug that was available in New Zealand. I was on a drug trial for a drug called Etrilizumab that changed my life for just over a year. Then the trial was abandoned because results weren't consistent enough for the drug to be licensed. Over the next 12 months, my life went to hell. I was going to the bathroom up to 30 times per day, had accidents because I was stuck in traffic and couldn't get to a bathroom. In the end, I had surgery and am 3 months post Ileostomy. I can tell you this is the best I have felt for 10 years. I am 64 years old, work out 4 to 5 times per week, swim, snorkel, go hunting, and ride my motorcycle, all things I haven't been able to do for a few years.
Embrace the change, accept what you have, and live your best life.

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