Have colostomy with stoma beginning to prolapse. Little over 2" in diameter and about 2" in length. Was 1" in length. Had colostomy about 8 months ago from ileostomy. Have gained about 30 lbs. Probably reason for prolapse.
Hermit
Aug 10, 2017 10:52 pm
2010surgery
Aug 18, 2017 3:16 am
I have had at one time about 3 inches. Scary and obvious. I have developed a larger buldge (hernia) 1/2 fastball. I found it gets worse if strain on your gut. As I relax and stay off my feet and lying around a lot of the prolapse has decreased to about that It would for me, call normal 3/4to1in. This has been over. 5years for me. I am afraid to get it repaired as I do not trust the surgery. This started also in my first year after surgery. I was not aware that the odds were 50% that this would happen. Do easy stomach exercises while holding in the stoma. I got comfortable with just forcing the stoma back in the gut. I found out about the 4" NuHope hernia belt with the hole to place over the stoma and bulge. the bag fits through. As you tighten the bulge it helps to keep the stoma in. I wear it all day not at sleep. If I do any work or exercise I will wear a regular hernia support right over the stoma and gut, hoping no action happens. It's a bummer and stuck with it. I am sitting on the coach with the hernia belt on and the bag hanging out. Stoma small and out about 1/2". Try to work on it and it should go back and get a NuHope belt.
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Posted by: Primeboy
Hi Mike and all. I am not sure how panoramic my perspective really is as my peripheral vision shrinks with each passing year. I can tell you that when I came to this website six years ago I was truly ;impressed by the positive attitudes of so many members, especially the younger folks who refused to let their ostomies define who they were or what they would become. I also came to appreciate that having an ostomy is not the same thing as having a disease. Pardon ;my pun now, but ostomies and cancer don't belong in the same bag. One is a solution, the other is a problem. Celebrating National Ostomy Day ;is also well outside my comfort zone. That's like celebrating National Wheel Chair Day. Come on!
I think there is a ;need for improved ;public awareness of ostomies, but I am not sure how that's best done. There ;remains ;some social stigma attached to our situation, and it's acutely felt among our young. We need to get out of the dark ages on this issue, but not by going 'in your face' to everyone else. I think Bill and NDY are 'spot-on' when it comes to telegraphing the right message to friends and family. People will know how to react when they ;see ;how we accept the cards we were dealt. I also appreciate the contribution some people here are making to this effort through their publications.
On a personal note, my son has been suffering from ulcerative colitis for years just like I did. I am very concerned because people with UC are at a higher risk for colon cancer. Years ago my GI told me to get annual colonoscopies to be on the safe side. I am glad I did because he eventually found pre-cancerous cells which led to several surgeries and my becoming an ostomate. Since then I have always ;conveyed a positive attitude to ;my son about wearing a bag because it has kept me alive to enjoy many more years with my loved ones. I think he got the message. We both go to the same gastroenterologist in NYC and get scoped on the same day. Father and Son moments!
Someone once wrote that our children are the letters we write to the future.
PB
Hermit
Aug 18, 2017 3:31 pm
Tks for reply. Surgeon used mesh and said it wouldn't happen. I have the new hope belt and am doing the same as you. Have gained a lot of weight. Might be the reason for it. Now I have spinal lumbar stenosis and can't walk 100 feet without resting. Seeing specialist Monday. One thing after another.
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