It's been five weeks since my UC got the better of me and I had to have a permanent ileostomy. Really been doing well but three days ago I started having stabbing, burning pain at the stoma site. Doctor today tells me it could (probably is) nerve related. Means it too is likely permanent? OMG. What now? This pain is significant and comes with no warning. I'm not sure I can handle it. Does anyone know what, if anything, can be done? The doctor didn't seem to know. Said I might have to seek the help of a pain specialist. Help.
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