I am new here. I just wanted to introduce myself. My name is Chrissy and I am a mother of 4, just turned 40. A little about me... Last year I was diagnosed with cervical cancer (early stage). I had to have a radical hysterectomy (Jan 5, 2018). I ended up having complications afterwards. Although I was told beforehand that recto-vaginal fistulas were rare, it was possible... I was that unlucky person who got 3 fistulas. The surgeon nicked my colon during surgery and had to repair it. So that repair healed to the vaginal repair and left holes. I was devastated. Four weeks after the radical hysterectomy, I had to have an ileostomy (Feb 6, 2018). This whole ordeal has really taken a toll on me emotionally. I have cried almost every day until recently. This ileostomy is temporary, but it still sucks. The doc said about 8 months to see if the fistulas heal on their own. It's only been 4 weeks. Sex has been an issue. My boyfriend of 1.5 years shows no interest. I can't have sex due to the fistulas, however, there are other ways to please one another. Still... nothing in 2 months. He won't even look at my stoma. I have adjusted to it well, better than I expected. I'm certain he is grossed out by it. I even bought the cute black lace wrap from Ostomysecrets. I keep my bag clean. No odor unless emptying it on occasion. I even rinse my bag out every time I empty it. I have never felt so gross. I am not really sure what to do at this point. I know I am not alone. I am curious to see how others handle this situation.
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 33,086 members. Get inside and you will see.
We're not all about ostomy. Everything is being discussed in the forums.
It's a very special community, embracing all ages and backgrounds. People are honest and truly care.
Privacy is very important - the website has many features that are only visible to members.
Create an account and you will be amazed.
Advertisement
Hollister
Read our tips to help you prepare for air, ground, or cruise travel with a stoma.
Advertisement
Hollister
Your stoma doesn't have to get in the way of sampling local cuisine and activities when you're on vacation.
Check out our travel tips on diet and fitness.
Check out our travel tips on diet and fitness.