After having anal cancer in 2014. I have had fecal incontinence from pelvic radiation. I had the Medtronic Interstim device for 3 years with very little improvement! I had it removed and my surgeon suggested I get an Ostomy until something better came on the market for incontinence. I did that because I was told I could have it reversed! After the surgery now 6 months ago, I hate it bc my stoma is flush with my belly and leaks daily! 5 weeks after my ostomy surgery (at the Cleveland Clinic in S. Florida mind you) my Stoma died on the vine so to speak and I had to have emergency surgery to have the necrotic tissue removed, leaving me with a flush stoma and HORRIBLE leakage!!!!
So, I asked my surgeon to reverse it and she said OHHHHH I wouldn't do that! because your incontinence will be WORSE than it was before!!!!! Did she tell me that before I agreed to have a TEMPORARY ostomy????? NO NO NO!!!
So, a reversal is out and I'm not a candidate for Irrigation (bc after pelvic radiation it slows your bowels down!)
So, my new GI doctor says why don't you check into a J Pouch? I tell my surgeon at CC about the J Pouch suggestion and she goes off the rails about how that is not an option!!!
My GI doc (that I really trust!!) suggests I find a Irritable Bowel Disease Surgeon at the CC....which would be super awkward to go over my Colorectal Surgeon!
I live in the Clearwater/ Tampa area and he doesn't reccomend anyone in this area and to go back to Miami or another major metropolitan area!!!
If anyone out there has any comments or suggestions I would REALLY appreciate it! Thank you, Kathy